Validation and testing of the Acceptability E-scale for Web-based patient-reported outcomes in cancer care

Tariman, Joseph D.; Berry, Donna L.; Halpenny, Barbara; Wolpin, Seth; Schepp, Karen G.

doi:10.1016/j.apnr.2009.04.003

Cited by 124 publications

(92 citation statements)

References 12 publications

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“…Scores for the Acceptability Escale [37] averaged 25.1 (SD=3.8), meeting our previously-established criteria for good acceptability. The new value of information item mean score was 3.8 (SD=1.0).…”

Section: Resultsmentioning

confidence: 69%

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The Personal Patient Profile-Prostate decision support for men with localized prostate cancer: A multi-center randomized trial

Berry

Halpenny

Hong

et al. 2013

Urologic Oncology: Seminars and Original Investigations

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169

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OBJECTIVE The purpose of this trial was to compare usual patient education plus the Internet-based, Personal Patient Profile-Prostate, versus usual education alone, on conflict associated with decision making, plus explore time-to-treatment and treatment choice. METHODS A randomized, multi-center clinical trial was conducted with measures at baseline, one and six months. Men with newly diagnosed localized prostate cancer who sought consultation at urology, radiation oncology or multi-disciplinary clinics in four geographically-distinct American cities were recruited. Intervention group participants used the Personal Patient Profile-Prostate, a decision support system comprised of customized text and video coaching regarding potential outcomes, influential factors, and communication with care providers. The primary outcome, patient-reported decisional conflict, was evaluated over time using Generalized Estimating Equations to fit generalized linear models. Additional outcomes, time-to-treatment, treatment choice and program acceptability/usefulness, were explored. RESULTS A total of 494 eligible men were randomized (266 intervention; 228 control). The intervention reduced adjusted decisional conflict over time as compared with the control group, for the uncertainty score (estimate −3.61; (confidence interval, −7.01,−0.22) and values clarity (estimate −3.57; confidence interval (−5.85,−1.30) Borderline effect was seen for the total decisional conflict score (estimate −1.75; confidence interval (−3.61,0.11). Time-to-treatment was comparable between groups, while undecided men in the intervention group chose brachytherapy more often than in the control group. Acceptability and usefulness were highly rated. CONCLUSION The Personal Patient Profile-Prostate is the first intervention to significantly reduce decisional conflict in a multi-center trial of American men with newly diagnosed localized prostate cancer. Our findings support efficacy of P3P for addressing decision uncertainty and facilitating patient selection of a prostate cancer treatment that is consistent with the patient values and preferences.

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Section: Resultsmentioning

confidence: 69%

“…P3P program user acceptance was measured in the intervention arm after initial P3P use with the Acceptability E-scale. [37] Cronbach’s alpha for the six-item Acceptability E-scale was .79. Additional items were added to rate value of the information and usefulness of specific components.…”

Section: Methodsmentioning

confidence: 99%

The Personal Patient Profile-Prostate decision support for men with localized prostate cancer: A multi-center randomized trial

Berry

Halpenny

Hong

et al. 2013

Urologic Oncology: Seminars and Original Investigations

Self Cite

100

169

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“…The technical aspects and navigability of the ESRA-C program have been described elsewhere [22–24]. The ESRA-C has been shown to be well-received by patients [21,25]. During the T1 session, patients were presented with an introductory screen followed by demographic questions.…”

Section: Methodsmentioning

confidence: 99%

Risk Factors for Depression in Patients Undergoing Hematopoietic Cell Transplantation

Artherholt

Hong

Berry

et al. 2014

Biology of Blood and Marrow Transplantation

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Despite the prevalence and known adverse impacts of depression after hematopoietic cell transplantation (HCT), little is known about the trajectory of depression following HCT, or which pre-transplant risk factors might help predict new or worsening depression post-HCT. This secondary analysis was conducted to evaluate the relationships between pre-transplant patient-reported outcomes and demographic characteristics and post-transplant depression. 228 adult HCT patients were evaluated pre-transplant (T1) and 6 to 7 weeks post-transplant (T2), using touch-screen computers in the transplant clinic during participation in a larger trial. Measures included the Symptom Distress Scale, the EORTC QLQ-C30 for quality of life, a single-item Pain Intensity question, and the PHQ-9 for measurement of depression. At T1, rates of depression were quite low with only 6% of participants endorsing moderate or higher depression. At T2, however, 31% had moderate or higher depression. We observed a strong linear relation in PHQ-9 scores between T1 and T2 (p<.0001). T1 depression score was a significant predictor of depression scores at T2 (p=.03), as was poorer emotional function at T1 (p<.01). Results indicate that depression is common post-HCT, even for patients with low depression pre-transplant. Frequent screening for depressive symptoms at critical time points, including 6–7 weeks post-HCT, are needed in this population, followed by referrals to supportive care as appropriate.

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“…The original scale was developed by University of Washington researchers in 2011 to evaluate patient‐reported outcomes in cancer care (Tariman et al . ). Tariman et al .…”

Section: Methodsmentioning

confidence: 97%

‘Clinical Chatter’: every nurse informed

Talbott

Watson

Tariman

et al. 2017

Journal of Clinical Nursing

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Validation and testing of the Acceptability E-scale for Web-based patient-reported outcomes in cancer care

Cited by 124 publications

References 12 publications

The Personal Patient Profile-Prostate decision support for men with localized prostate cancer: A multi-center randomized trial

The Personal Patient Profile-Prostate decision support for men with localized prostate cancer: A multi-center randomized trial

Risk Factors for Depression in Patients Undergoing Hematopoietic Cell Transplantation

‘Clinical Chatter’: every nurse informed

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