Validation of the Dutch version of the Edmonton Symptom Assessment System

Baan, Frederieke H. van der; Koldenhof, J.J.; Nijs, Ellen Jm de; Echteld, Michael A.; Zweers, Daniëlle; Hesselmann, Ginette M; Vervoort, Sigrid C. J. M.; Vos, J. Bernard H.; Graaf, Everlien de; Witteveen, Petronella O.; Suijkerbuijk, Karijn P M; Graeff, Alexander de; Teunissen, Charlotte E.

doi:10.1002/cam4.3253

Cited by 20 publications

(18 citation statements)

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“…[5][6][7]33,[56][57][58][59] Additionally, we calculated the mean values of the ESAS-TOT scores, and ESAS-PHY and ESAS-PSY symptom distress sub-scores. Furthermore, we used the concept of the scoring stratification of 0 (no symptom), 1-3 (mild), 4-6 (moderate) and 7-10 (severe) 5,18,21,22,32,34,51,53,[55][56][57][58]60 , to stratify the calculated ESAS-TOT symptom scores into TOT-low (0-8), TOT-mild , TOT-moderate and TOT-severe (63-90); ESAS-PHY sub-scores into PHY-low (0-5), PHY-mild (6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20)(21)(22)(23), PHYmoderate (24)(25)(26)(27)(28)(29)(30)(31)(32)…”

Section: Discussionmentioning

confidence: 99%

“…These side effects can burden patients' physical and psychological wellbeing to the extent that in some cases treatment may be postponed or discontinued. [3][4][5][6][7][8][9][10][11][12][13][14][15][16][17] Therefore, it is essential for patients to be able to effectively communicate any adverse effects they are experiencing to their healthcare providers. Several studies [4][5][6]8,10,12,[18][19][20][21][22][23][24][25][26][27][28][29][30] have reported that systematic self-reporting of patients' symptoms during their cancer journey has facilitated appropriate intervention, allowed patients to communicate their most relevant physical symptoms and psychosocial concerns to their healthcare providers and revealed the impact of cancer and treatment from patients' perspective.…”

Section: Introductionmentioning

confidence: 99%

“…[3][4][5][6][7][8][9][10][11][12][13][14][15][16][17] Therefore, it is essential for patients to be able to effectively communicate any adverse effects they are experiencing to their healthcare providers. Several studies [4][5][6]8,10,12,[18][19][20][21][22][23][24][25][26][27][28][29][30] have reported that systematic self-reporting of patients' symptoms during their cancer journey has facilitated appropriate intervention, allowed patients to communicate their most relevant physical symptoms and psychosocial concerns to their healthcare providers and revealed the impact of cancer and treatment from patients' perspective. According to Basch et al 19 and Cleeland et al 20 , systematic symptom reporting by patients correlates with decreased symptom severity, reduced hospital and emergency room visits, and an improved reported wellbeing.…”

Section: Introductionmentioning

confidence: 99%

“…4,8,[18][19][20]23,29,34 Consequently, several different tools have been designed to collect patient-reported outcomes to enable clear and timely communication of patients' symptoms to their healthcare providers. [3][4][5][6]8,10,12,[18][19][20][21][22][23][24][25][26]31,32,[35][36][37][38][39][40][41][42][43][44][45][46][47][48][49] The World Health Organisation Five Well-Being Index first introduced in 1998 is a positively worded self-reported measure for assessing emotional wellbeing. [41][42][43][44] The Functional Assessment of Cancer Therapy-General is a 27-item questionnaire designed to measure patient physical, social, emotional and functional wellbeing.…”

Section: Introductionmentioning

confidence: 99%

“…A summary of patient-reported ESAS symptom burden including type, symptom prevalence and severity of symptoms for entire cohort of patients stratified by no symptom (0), mild symptom (1-3), moderate symptom (4-6) and severe symptom(7)(8)(9)(10). 0 indicates no symptoms or best possible wellbeing, and 10 indicates worst possible symptom or wellbeing…”

mentioning

confidence: 99%

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Systematic self-reporting of patients’ symptoms: improving oncologic care and patients’ satisfaction

et al. 2022

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Background: In recent years, there has been a growing interest to enhance patients’ symptom management during routine cancer care using patient-reported outcome measures. The goal of this study is to analyse patients’ responses to the Edmonton Symptom Assessment System (ESAS) to determine whether patient-reported outcomes could help characterise those patients with the highest supportive care needs and symptom burden in order to help provide targeted support for patients. Methods: In this study, we analysed ESAS questionnaire responses completed by patients as part of their routine care and considered part of patients’ standard of care. Statistical analyses were performed using the IBM SPSS Statistics version 26.0. Descriptive statistics are used to summarise patient demographics, disease characteristics and patient-reported symptom severity and prevalence. Results: The overall mean age is 65.2 ± 12.8 years comprising 43.8% male and 56.2% female patients. The five common primary disease sites are breast (26.2%), haematology (21.1%), gastrointestinal (15.3%), genitourinary (12.7%) and lung (12.0%) cancers. The mean severity for each symptom is all mild (score: 1–3). The three most common reported symptoms causing distress are tiredness, poor overall wellbeing and anxiety, and the least reported symptom is nausea. Conclusions: Systematic self-reporting of patients’ symptoms is important to improve symptom management, timely facilitation of appropriate intervention, patient experience, and patient and family satisfaction. The awareness of disease site, gender and age-related symptom variations should help in the design and provision of appropriate symptom-directed, tumour-specific and patient-focused interventions to meet patients’ immediate needs.

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