Validierung der deutschsprachigen Version des „Short Inflammatory Bowel Disease Questionnaire” (SIBDQ)

Abstract

In the face of a hardly predictable course of illness--potentially effecting a severe diminution of daily activities--the quality of life (QOL) represents a chief outcome measure in the treatment of inflammatory bowel diseases (IBD). For the German-speaking area an economical disease-specific instrument measuring QOL has been missing, so far. Therefore, we translated and adapted the recently validated "Short Inflammatory Bowel Disease Questionnaire" SIBDQ (11). Bowel symptoms, systemic symptoms, moods, and social activities are represented by a total of 10 items. Along with this questionnaire 7 accepted instruments assessing QOL-components were administered to 125 outpatients (54 ulcerative colitis, 71 Crohn's disease) and 51 healthy controls. The psychometric properties are good. Consistency is alpha = .84, thereby slightly surpassing the Anglo-American SIBDQ (alpha = .78). Retest-reliability after 26 weeks is r = .60. Systematic covariations with accepted QOL-instruments give evidence for its convergent and discriminatory validity. Differences between groups (high vs. low inflammatory activity vs. healthy controls) substantiate its sensitivity. Thus, the German adaptation of the accepted SIBDQ supplies an economic, reliable, and valid instrument that proved able to assess clinically relevant differences in QOL in patients with IBD. We suggest that it should be used by its overall score rather than its subscales. The instrument is appropriate to be used in therapy outcome and evaluation studies. It allows international comparison.

Determinants of male sexual function in inflammatory bowel disease: A survey-based cross-sectional analysis in 280 men

“…The questionnaire for clinical patients included a short disease‐specific quality of life instrument (S‐IBDQ) 17. In addition, from a cancer‐related quality of life group a module for colorectal cancer patients was used because it contains several direct questions on sexual function and satisfaction, as well as information on stoma function and fecal continence (EORTC–QLQ–CR 38) 18.…”

Long-Term Quality of Life in Patients with Crohn's Disease and Perianal Fistulas: Influence of Fecal Diversion

“…16 This instrument was shortened to ten questions in the Short Inflammatory Bowel Disease Questionnaire, which was translated and validated in German. 17 It consists of an overall score summarizing the four subscales: bowel function, systemic function, emotional function, and social function. Patients may allocate between 1 point (worst) and 7 points (best) for each question.…”

Postoperative Complications have Little Influence on Long-term Quality of Life in Crohn’s Patients

“…The number of questions was then reduced from 32 to 10 in the SIBDQ, which was translated and validated in German. 26 The SIBDQ consists of the four subscales "bowel function," "systemic function," "emotional function," and "social function," which are summarized in an overall score. Patients can allocate between 1 (worst) and 7 points (best) for each question.…”