Views of Persons With Schizophrenia on Their Own Disorder: An Italian Participatory Study

Abstract

Participatory studies may provide ideas for a more constructive interaction between patients and professionals.

A Qualitative Exploration of Service Users’ Information Needs and Preferences When Receiving a Serious Mental Health Diagnosis

“…Outcome related evidence to support these themes raised by participants have been reported in previous literature. For example, an inverse relationship between stigmatizing attitudes and treatment adherence has been reported (Sirey et al 2001); individuals with hope for future recovery have been found to have a less pronounced perception of affective and social difficulties due to their diagnosis (Magliano et al 2008). Better provider-service user relationships show positive outcomes including improved quality of life and social functioning, and reduced symptoms and time spent in hospital (McCabe and Priebe 2004).…”

“…Knowledge relating to diagnosis has been considered as a first step to psychoeducation (Gantt and Green 1985). When asked, the majority of service users favor open diagnostic disclosure (Cleary et al 2010a;Jha et al 2001;Magliano et al 2008;Shergill et al 1998), rather than the situation arising that a diagnosis is formulated by a clinician for treatment purposes but the information is not discussed with the individual concerned.…”

Communication of a mental health diagnosis: a systematic synthesis and narrative review

“…Rates of service-users receiving or having knowledge of their diagnosis were collected in nine (L-IV) studies (Cleary et al, 2010a;Ganesan et al, 2011;Luderer & Bocker, 1993;Magliano et al, 2008;Marzanski et al, 2002;Seedat et al, 2002;Shergill et al, 1998;Thornicroft et al, 2009;Trump & Hugo, 2006). Studies conducted prior to the past decade reported low rates of diagnostic discussion for both schizophrenia diagnoses and general MHD (30%-65%).…”

“…Although many service users did not believe excessive stigma was associated with receiving psychiatric treatment (Greenwood et al, 2000), anxiety about stigma was reported as a reaction to diagnostic news (Gallagher et al, 2010). Due to stigma-related concerns, individuals felt the diagnosis could impact on their social identity (Lewis, 1995), their relationships with others (Magliano et al, 2008;Thornicroft et al, 2009) and their willingness to share diagnostic information with others (Gallagher et al, 2010). Furthermore, it may cause strong sense of shame due to their cultural beliefs (Hwang, 2008) or could lead to drop out from treatment (Seedat et al, 2002).…”

“…Furthermore, it may cause strong sense of shame due to their cultural beliefs (Hwang, 2008) or could lead to drop out from treatment (Seedat et al, 2002). It was reported that individuals who held hope for future recovery had a less pronounced perception of affective and social difficulties as a result of a schizophrenia diagnosis (Magliano et al, 2008).…”