Virtual Community Care? Social Policy and the Emergence of Computer Mediated Social Support

Burrows, Roger; Nettleton, Sarah; Pleace, Nicholas; Loader, Brian D.; Muncer, Steven

doi:10.1080/136911800359446

Cited by 153 publications

(128 citation statements)

References 19 publications

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“…Online self-help groups are social networks formed or facilitated through electronic media, and they appear as mailing lists, newsgroups or UseNet discussion forums, web-based discussion forums and live chat-rooms (Burrows, Nettleton, Pleace, Loader, & Muncer, 2000). Self-help groups, both face-to-face based and on the Internet, exist in a wide range of styles and structures.…”

Section: Methodsmentioning

confidence: 99%

“…They represent a "bottom-up" production of welfare (Burrows, Nettleton, Pleace, Loader, & Muncer, 2000), which is a key issue to social policies in Norway and other western welfare states. The multiplied possibilities to exchange information and the disembodied context offered by the Internet have further been emphasised as potential benefits (Hardey, 1999;Walther & Boyd, 2002).…”

Section: Methodsmentioning

confidence: 99%

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The dual role of the action researcher

Trondsen

Sandaunet

2009

Evaluation and Program Planning

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This article aims to provide more insight into advantages and challenges of conducting action research with the intention to improve health care. Action research is distinctive in the sense that the researcher has a dual role as both researcher and implementer of the program studied.The article is based on two Norwegian action oriented studies that aimed to explore the potential role of online self-help groups for breast cancer patients and adolescents with mentally ill parents respectively. We argue that action research can contribute both to the generation of knowledge, as well as a greater sense of ownership to the program among those who are intended to use it. Nonetheless, a potential conflict between the researcher's pursuit of data, and ethical considerations became apparent in the contexts studied here. Bearing these challenges in mind, we still conclude that action research offers an important contribution for the further development of health care services.Word count abstract: 152

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

The dual role of the action researcher

Trondsen

Sandaunet

2009

Evaluation and Program Planning

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“…The World Wide Web is celebrated as a means of providing greater opportunities for the public to engage with medicine (Craigie et al, 2002) and to understand the nature of illness. This is reflected in studies that indicate the way in which support is developed through sharing information and experiences of illness through chat-based online environments (Burrows et al, 2000). The opening of "cyber-pharmacies" (Oliver, 2000;Scaria, 2003), WebMD, and telemedicine, more broadly, make possible the opportunity for non-medics to become more aware of their conditions and to find others who can provide information for them.…”

Section: Cyberspace Power and Geneticsmentioning

confidence: 99%

“…Similarly, there remains some uncertainty about the level of comfort that online encounters can provide. The potential for "flaming" or misunderstanding seems considerable with CMCs and harassment can lead to considerably disempowering consequences (Burrows et al, 2000). This chal-lenge has been addressed in a variety of contexts, particularly those concerned with the provision of health care.…”

Section: Cyberspace Power and Geneticsmentioning

confidence: 99%

Genetics, cyberspace and bioethics: why not a public engagement with ethics?

Miah

2005

Public Underst Sci

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The representation of science, medicine, and technology has been an emerging agenda item for cultural and media research in the last decade. In part, its importance arises out of a concern for the public understanding of science (PUoS), which has been a priority in governmental policy discussions. This paper discusses how the utilization of cyberspatial communities can address the challenge of developing a global engagement with science and ethics, by considering the case of genetic technology and the role of experts in public debate. It critically appraises the PUoS and suggests that a way of advancing its methodological assumptions is through developing a “Public Engagemen with Ethics.” On this basis, concerns about scientific journalism are more effectively contextualized and enhance the possibility of ensuring that non-experts are aware of the importance of any scientific innovation

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“…Different scholars and related research fields have analyzed these controversial aspects of community organizations and action in urban studies. In social policies, the community concept has been abundantly debated in recent years (Burrows et al 2000). In particular, social policy scholars underline the emphasis of the community concept in the self-help and inclusion policy design and practices, related to public health provision, social housing and local welfare innovation.…”

Section: Introduction: the Concern For Communitiesmentioning

confidence: 99%

Community Action: Value or Instrument? An Ethics and Planning Critical Review

Tricarico

2017

Journal of Architecture and Urbanism

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Abstract. The community concept has maintained a constant and growing interest in urban studies and many related fields. The origin of this continuing interest seems to derive from the importance of the concept of community within diverse forms of political language and interpretations within different planning practices. In this contribution, through the analysis of different ethical and planning theories, we want to provide an update framework on community action. According to this objective, the argumentation will proceed through a literature review on four ethics theories and three key aspects related to spatial planning, as well as matching this theoretical analysis with exemplifying practices. The final objective is to provide an original analysis on drivers and outcomes of different forms of community, raising general issues that refer to spatial planning, social organization and regulation.

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Virtual Community Care? Social Policy and the Emergence of Computer Mediated Social Support

Cited by 153 publications

References 19 publications

The dual role of the action researcher

The dual role of the action researcher

Genetics, cyberspace and bioethics: why not a public engagement with ethics?

Community Action: Value or Instrument? An Ethics and Planning Critical Review

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