VOICE: Developing a new measure of service users' perceptions of inpatient care, using a participatory methodology

Evans, Joanne; Rose, Diana; Flach, Clare; Csipke, Emese; Glossop, Helen; McCrone, Paul; Craig, Tom; Wykes, Til

doi:10.3109/09638237.2011.629240

Cited by 117 publications

(103 citation statements)

References 32 publications

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“…The involvement of patients in PROM development is deemed essential (Patrick et al, 2008), and helps to ensure that the constructs measured, the questions included and the language and terminology used are acceptable to, and reflect the priorities and preferences of, the target patient populations. Within the mental health field, PROMs have also been developed using innovative participatory methodology (Evans et al, 2012;Rose et al, 2011;Trivedi & Wykes, 2002). For example, Views on Inpatient Care (VOICE) is a 19-item measure that was designed with significant input from mental health service users, including people who had been detained under the 1983 Mental Health Act and service user researchers (Evans et al, 2012).…”

mentioning

confidence: 99%

“…Within the mental health field, PROMs have also been developed using innovative participatory methodology (Evans et al, 2012;Rose et al, 2011;Trivedi & Wykes, 2002). For example, Views on Inpatient Care (VOICE) is a 19-item measure that was designed with significant input from mental health service users, including people who had been detained under the 1983 Mental Health Act and service user researchers (Evans et al, 2012).…”

mentioning

confidence: 99%

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Philosophical ruminations on measurement: methodological orientations of patient reported outcome measures (PROMS)

Neale

Strang

2015

Journal of Mental Health

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confidence: 99%

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confidence: 99%

Philosophical ruminations on measurement: methodological orientations of patient reported outcome measures (PROMS)

Neale

Strang

2015

Journal of Mental Health

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“…Seventy-eight had full data for all items on the VOICE scale, and five participants had over 80% response to VOICE items. Following the procedure reported by the authors of the instrument, 9 for participants responding to at least 80% of the items, a pro-rated score was calculated; less than 80% response was considered as a missing total VOICE score.…”

Section: Acceptability (Ecological Validity) and Reliabilitymentioning

confidence: 99%

“…In the context of psychiatric care this may partially reflect the reluctance that still prevails in acknowledging that people with mental health problems may be reliable informers, and capable of being involved in research and policies. [9][10][11] The Views on Inpatient Care (VOICE) 9 is an instrument that tries to overcome such constraints. It was developed using an innovative methodology that involved service users throughout the research project as both participants and researchers, and relies solely on their perceptions of acute care.…”

Section: Introductionmentioning

confidence: 99%

Portuguese Adaptation and Input for the Validation of the Views on Inpatient Care (VOICE) Outcome Measure to Assess Service Users’ Perceptions of Inpatient Psychiatric Care

Palha

Dias

et al. 2017

Acta Med Port

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Introduction: Patient satisfaction is an important measure of health care quality. Patients’ views have seldom been considered in the construction of measures addressing satisfaction with inpatient facilities in psychiatry. The Views on Inpatient Care - VOICE - is a first service-user generated outcome measure relying solely on their perceptions of acute care, representing a valuable indicator of service users’ perceived quality of care. The present study aimed to contribute to the validation of the Portuguese version of VOICE.Material and Methods: The questionnaire was translated into Portuguese and applied to a sample of eighty-five female inpatients of a psychiatric institution. Data analysis focused on assessing reliability and exploring the impact of demographic and clinical variables on participants’ satisfaction.Results: Internal consistency of the questionnaire was high (α = 0.87). Participants’ age and marital status were associated with differences in scores, with older patients and patients who were married or involved in a close relationship presenting higher satisfaction levels.Discussion: The questionnaire demonstrated good internal consistency and acceptability, as well as construct validity. Further studies should expand the analysis of the psychometric properties of this measure e.g., test-retest reliability.Conclusion: The Portuguese version of VOICE is a promising tool to assess service users’ perceptions of inpatient psychiatric care in Portugal.

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“…was developed using participatory methodology (Evans et al, 2012) with contributions from service users. It was then reviewed and approved by a service user advisory group to ensure it covered relevant concerns.…”

Section: Experience Feedback Questionnaire (Efq)mentioning

confidence: 99%

The optimisation of experience sampling protocols in people with schizophrenia

Edwards

Cella

Tarrier

et al. 2016

Psychiatry Research

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Experience sampling methodology (ESM) involves completing questionnaires during daily life and has been used extensively in people with schizophrenia to assess symptoms and behaviours. Despite considerable advantages over interview measures, there is limited information about its external validity. Our aim is to investigate whether ESM protocol implementation is affected differentially in people with schizophrenia and healthy individuals by factors such as mood, medication and symptoms which would have implications for validity. Fifty-three people with schizophrenia and fifty-eight controls from the general population completed seven ESM questionnaires per day for six consecutive days. Compliance and acceptability, including overall experience, training and disruption of normal routines, were recorded. Overall questionnaire completion rate in people with schizophrenia was comparable to controls (i.e. over 70%). People with schizophrenia completed significantly fewer questionnaires in the morning but did not show fatigue effects over the experience sampling period. Excluding questionnaires in the morning did not significantly alter the findings. In the schizophrenia group medication level and symptoms did not influence adherence. However, higher disruption was associated with reduced questionnaire completion in this group. These findings suggest that minimising disruption may enhance validity and completion rates. ESM is a valid methodology to use with people with schizophrenia. Highlights This is the first study to examine the validity of an ESM protocol.  People with schizophrenia show similar protocol compliance to healthy controls.  People with schizophrenia complete fewer questionnaires in the morning.  Medication and symptom levels do not influence questionnaire completion rates.  Levels of reported disruption were associated with reduced questionnaire completion.

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VOICE: Developing a new measure of service users' perceptions of inpatient care, using a participatory methodology

Cited by 117 publications

References 32 publications

Philosophical ruminations on measurement: methodological orientations of patient reported outcome measures (PROMS)

Philosophical ruminations on measurement: methodological orientations of patient reported outcome measures (PROMS)

Portuguese Adaptation and Input for the Validation of the Views on Inpatient Care (VOICE) Outcome Measure to Assess Service Users’ Perceptions of Inpatient Psychiatric Care

The optimisation of experience sampling protocols in people with schizophrenia

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