Vulnerability, Disability, and Palliative End-of-Life Care

Stienstra, Deborah; Chochinov, Harvey Max

doi:10.1177/082585970602200307

Cited by 31 publications

(34 citation statements)

References 44 publications

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“…[32] A disability is anything that causes an inability of an individual to function normally, physically or mentally. [33] Hearing impairment is classified as an invisible disability because there may be no visual clues that the patient has any such impairment.…”

Section: Cancer In the Physically Challengedmentioning

confidence: 99%

Psychosocial issues in palliative care: A review of five cases

Onyeka

2010

Indian J Palliat Care

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Palliative care is not just vital in controlling symptoms of the patient’s disease condition, but also aims to extend the patient’s life, giving it a better quality. However, several times in the course of management, the psychosocial impact of cancer, HIV/AIDS, and other life-limiting disease conditions may not be noticed and dealt with during the admission period, thereby giving rise to a more complex situation than the disease condition itself. This article aims to review some psychosocial issues and measures that can be taken to address them. It highlights the various roles and the importance of the clinician, nurse, social worker, and other members of the multidisciplinary team in tackling these issues and will help healthcare professionals in this field achieve better practice in the future.

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Section: Cancer In the Physically Challengedmentioning

confidence: 99%

Psychosocial issues in palliative care: A review of five cases

Onyeka

2010

Indian J Palliat Care

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“…Vulnerable persons are considered to be those less able to defend themselves (Rose & Pietri 2002). The vulnerability of people in palliative care (Gill 2006; Stienstra & Chochinov 2006) and in mental health (Copeland 2007) is discussed in the literature with regard to the need for special consideration by researchers. The vulnerable persons or populations are identified as requiring special protection from possible harm through abuse, exploitation, or discrimination by others in relationships of power (Rose & Pietri 2002).…”

Section: Introductionmentioning

confidence: 99%

Vulnerable populations and multicentred research

McCauley-Elsom¹,

Gurvich²,

Lee³

et al. 2009

Int J Mental Health Nurs

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There are many challenges facing researchers with projects requiring multicentred ethics approval. Achieving ethical approval at multiple sites, whether statewide or nationally, is a complex and time-consuming experience, compounded by the research process itself, as well as the recruitment of clinical sites and participants. Human ethics and research committees act as research gatekeepers and, as many research activities involve multiple applications and multiple approvals, can considerably delay the commencement of a project. A delay in ethics approval results in delays recruiting staff and participants, delays in the utilization of funding, and in delays regarding the progress and completion of projects. Such problems are additional problems for researchers of vulnerable populations, such as those in mental health or palliative care, where multicentred research is necessary to ensure the validity of the project itself. A current example of work that has required multicentred human ethics and research approval from around Australia is the establishment of the National Register of Antipsychotic Medication in Pregnancy. The guidelines for embarking on such a project with the requirement of multicentred ethical approval are described. Some of the issues, recommendations, and guidelines presented by the authors are taken from their experiences in establishing multicentred research projects.

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“…For instance, might an assumption of poor quality of life in a patient with longstanding disabilities lead to the withholding of life sustaining choices? 17 Might ageist assumptions mean that conversations about intimacy are rarely initiated? 18 Is a health worker more likely to assume intoxication in a confused, homeless patient, before considering whether they have a metabolic disorder?…”

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confidence: 99%