What components of rehabilitation are helpful from the perspective of individuals with multiple sclerosis?

Abstract

The helpful components of both in-patient and out-patient rehabilitation that are of particular importance to people with MS are diverse and show the relevance of ICF in rehabilitation and the need for a comprehensive view in rehabilitation. The importance of peers and peer support should be taken into account in rehabilitation planning and related recommendations. The findings show that helpful rehabilitation for people with MS is not a set of mechanistic interventions but requires good social relationships and support. Implications for Rehabilitation Helpful components of rehabilitation for people with MS are diverse and show the need for a comprehensive and individual view in rehabilitation. Professionally guided peer support should be offered as a part of rehabilitation. Interventions related to assistive technology and home adaptations should be an obvious part of rehabilitation. It is important to support people with MS to preserve identity as an active person and to take personal responsibility in their own rehabilitation.

A scoping review of home modification interventions – Mapping the evidence base

“…The participants in the included studies were predominantly older, community dwelling adults (71%); however, other studies investigated home modifications on more specific sub-sample populations such as carers, 7 dementia patients 8 or particular diagnoses such as children with cerebral palsy or people with a multiple sclerosis diagnosis. 9,10 Table 1 shows the spread of all sub-population samples in the included studies.…”

One-Year Changes in Activities of Daily Living, Usability, Falls and Concerns about Falling, and Self-Rated Health for Different Housing Adaptation Client Profiles

“…Although 75% of them are older than 70 years [ 10 ], and the majority are facing age-related health decline and dependence due to barriers in the housing [ 11 ], younger people with acute or progressive diseases or injuries also receive HA [ 12 ]. Most HA clients receive health and social care in parallel, e.g., provision of mobility devices and assistance with activities of daily living (ADL) [ 12 , 13 , 14 ]. Previous research has shown that HA has a positive effect on activity, such as reduced dependence in ADL and increased activity performance [ 8 , 15 , 16 ], usability in the home [ 8 ], improved fall-related outcomes [ 17 , 18 ], and self-rated health [ 19 , 20 ].…”

Bewegungstherapie und Sport bei Patienten mit Multipler Sklerose

“…Die persönliche Komponente bei der Betreuung scheint eine starke Rolle zu spielen. So wünschen sich Patienten soziale Unterstützung und Austausch im Umgang mit der Krankheit sowie beim Transfer in das häusliche Setting einschließlich eventueller Anpassungen (25,26). Hier kann nebst der fachlichen Kompetenz des medizinischen Personals wie Ärzten, Krankenschwestern, medizinischen Fachangestellten, Therapeuten auch ein vertrauensvoller Umgang mit anderen Patienten, Familie, Angehörigen und Selbsthilfegruppen (4) hilfreich sein.…”