What does family-centred care mean to nurses and how do they think it could be enhanced in practice

Abstract

To provide good quality family-centred care nurses need adequate resources, appropriate education, support for managers and support from other healthcare disciplines.

Presença da família durante o atendimento emergencial: percepção do paciente vítima de trauma

“…Em outros contextos assistenciais, sobretudo na Europa e Estados Unidos, a inserção de familiares durante a realização de procedimentos invasivos e/ou atendimentos emergenciais já é uma realidade e constitui uma abordagem pautada no cuidado centrado na família (CCF) (12). Segundo esse referencial, que consistiu as bases teóricas da presente investigação, a família é considerada unidade fundamental no cuidado a seus membros, e o isolamento social do paciente configura como fator de risco.…”

Involving Parents in Managing Their Child's Long-Term Condition—A Concept Synthesis of Family-Centered Care and Partnership-in-Care

“…Figure 3 illustrates that the key antecedents of family-centred care and partnership-in-care identified through in our concept synthesis are: a theory-practice gap, unclear roles and boundaries, entrenched professional practices and attitudes towards working with families, and lack of organisational or managerial guidelines or policies specifically aimed at supporting the implementation of patient-centred care.  Gap exist between theory and practice (Coyne, 2011;Coyne et al 2013b;Hughes, 2007;Murphy & Fealy, 2007)  Operationalising family-centred care is hindered by individual health professions attitudes towards, values and perception of and family-centred care (Ladak et al 2013;Maccdonald et al 2012)  Unclear roles and boundaries between parents and health professionals, entrenched professional practices with health professionals retaining role of decision maker, care prescriber and care giver (Bridgeman, 1999;Bruce et al 2002;Coyne, 2013a;Hughes, 2007;Murphy & Fealy, 2007;Paliadelis, et al 2005)  Inadequate nursing assessment and documentation relating to role negotiate; lack of knowledge and skills in relation to implementing family-centred care; operates without effective sharing of information, and collaboration or negotiation with families (Bruce et al 2002;Coyne 2013a;Holm, et al 2003;MacKay & Gregory, 2011)  Lack of organisational, managerial support, guidelines or policies hinders the implementation and consistency of embedding family centred care in practice of familycentred care (Coyne, 2011;Davies 2013, Coyne 2013bMacKay & Gregory, 2011MacKean et al 2005)  The design and organisation of the care environment can be facilitator or a barriers to embedding family to care into practice (Beck, 2009;Coyne et al 2013b;Coyne, 2011;Koller et al 2006;Bruce et al 2002)  Model outdated and does not reflect current practice' partnership professional rather tha...…”

“… Include and value parents contribution to the care team (Davies, 2012)  Clear roles and effective interdisciplinary collaboration (Coyne, 2011;MacKean et al 2005)  Mutual agreement about roles (Coyne & Cowley, 2007)  Focus on problem-based communications by listening to the family, drawing on family expertise, responding to family concerns (Mäenpää et al 2013) …”

“…Valuing parents' knowledge and experiences  Know the family and developing effective parent-professional relationship (Davies, 2012;Murphy & Fealy, 2007)  Collaborate and share decisions about child's care (Coyne, 2011;MacLean et al 2007)  Effective communication skills (MacKean et al 2005)  Build trust, listen to parent concerns, value parents knowledge of their child (Fereday, et al 2010;Ford, 2011)  Respecting and being sensitive to individual family's context (Raghavendra, et al 2007) Supporting parents in their role as care giver  Provide opportunities for information sharing (Bruce, et al 2002;Coyne, 2011;Coyne, 2013b;Holm, et al 2003;Koller, 2006;)  Facilitate parents to involved in the child care; clarify and negotiate roles (Coyne, 2011;Holm, et al 2003;Hughes, 2007)  Professionals have and share specialised knowledge to support family (Davies, 2012)  Design services round the child and family needs (Bruce, et al 2002)  Maintain contact and going support (Coyne & Cowley, 2007;Ford, 2011)  Mutual exchange of information about the child's specific health issues (Ford, 2011;Lam, et al 2006;Lee, 2007) Incorporating parents' expertise into clinical and psychosocial care…”

Self-efficacy scale for the establishment of good relationships with families in neonatal and pediatric hospital settings

“…In the pediatric context, despite the physical proximity between families and nurses, professionals impose limits on the interpersonal relationships they establish and the care approach is characterized by detachment and provision of information, marginalizing the relational aspect of care (2)(3) . Nurses need to acquire knowledge and develop skills and competencies to relate properly with families.…”