What factors have influenced quality of life in people with dementia and their family carers during the COVID-19 pandemic: a qualitative study

Daley, Stephanie; Akarsu, Nazire; Armsby, Elise; Farina, Nicolas; Feeney, Yvonne; Fine, Bethany; Hughes, Laura; Pooley, Joanna; Tabet, Naji; Towson, Georgia; Banerjee, Sube

doi:10.1136/bmjopen-2021-053563

Cited by 13 publications

(10 citation statements)

References 32 publications

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“…Next, Board 8 presents the author and the title of the respective study. According to Daley et al (2022), the Covid-19 pandemic has led to a significant disruption in health and social care services, particularly for people with dementia, their caregivers, and family members, this is problematic, as a group that relies on timely and responsive services for live well with the disease. The survey interviewed 16 family caregivers in South East England.…”

Section: Covid-19 Pandemic and Innovationmentioning

confidence: 99%

Covid-19 pandemic influences relationships on innovation, environmental practices and social actions in enterprise: the theoretical framework

Severo

Guimarães

Vieira

2023

FSRJ

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Purpose: This study aims to analyze the relationships between the Covid-19 Pandemic, innovation, environmental practices, social actions, and the influence on people's quality of life, in the context of Brazilian organizations, through the proposition of a Theoretical Framework. Methodology /Approach: The methodology was qualitative and exploratory research, through a theoretical and systematic review of the Scopus database. For data analysis, content analysis was used, with categories listed a priori. Originality/Value: In the research, 4 theoretical propositions were listed, which were analyzed through a systematic review in the Scopus database, as it is one of the largest databases of scientific articles reviewed by peers worldwide. Findings: In the course of the research, with the filter used by Article title, it was identified that the largest number of publications (269 documents) went to Proposition 1, in second place with 16 publications we present Proposition 3, occupying the third place emerges Proposition 4 with 10 publications, and as the last classified we have Proposition 2 with only 1 published article. Theoretical and methodological contributions: The impact of the research is linked to the validation of a theoretical framework, which presents factors that the Covid-19 pandemic is influencing the development of Brazilian organizations, as well as the information collected will provide the academic community and professionals in related areas, a better understanding of the performance of organizations, showing subsidies for managers, from organizations of different segments and sizes, to improve decision-making in the face of the pandemic in the environmental, social and improvement of people's quality of life.

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Section: Covid-19 Pandemic and Innovationmentioning

confidence: 99%

Covid-19 pandemic influences relationships on innovation, environmental practices and social actions in enterprise: the theoretical framework

Severo

Guimarães

Vieira

2023

FSRJ

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“…18 O nível reduzido de atividades sociais e de apoio teve influência negativa na motivação, níveis de fadiga, apatia, irritabilidade e prejuízo piora cognitivo, além de maiores queixas álgicas. 3,9,36 Em pesquisa realizada na América do Sul, houve piora da função de memória em 53% das pessoas dos indivíduos com demência, com maior sensação de tristeza em 31% e apresentação de sintomas de ansiedade em 37% destes. 3 Os sintomas mais comumente relatados nas pessoas com demência foram: apatia, ansiedade, agressão/irritabilidade e depressão, sendo que há estudos que indicam que o início ou piora dos sintomas neuropsiquiátricos ocorreu após o lockdown.…”

Section: Metodologiaunclassified

Impactos da pandemia da COVID-19 em pacientes portadores de demências e seus cuidadores

Almeida¹,

Freitas²,

Santos³

et al. 2022

Braz. J. Hea. Rev.

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Introdução: Demência é uma síndrome clínica decorrente do comprometimento da função cognitiva, cuja incidência e prevalência são acrescidas com a idade, sendo uma das principais causas de perda da independência e autonomia do idoso. Durante a pandemia, idosos com demência formaram grupo de grande vulnerabilidade, sofrendo extenso impacto no manejo clínico de sua doença, gerando consequências em toda conjuntura familiar, principalmente em seus cuidadores. Metodologia: Revisão de literatura integrativa através da busca bibliográfica nas bases: Scielo, Lilacs e BVS . Descritores utilizados: “demência”, “pandemia” e “COVID-19”. Foram encontrados 112 artigos, 82 destes foram descartados por não se relacionarem diretamente com a temática ou não possuírem textos disponibilizados na íntegra . Incluídos nesse estudo artigos que abordassem eixos temáticos das demências e da pandemia e artigos com menos de 10 anos que tratassem do conceito das demências. Resultados: Estudos mostram que a pandemia trouxe limitações em diferentes âmbitos para pacientes com demência e seus cuidadores. A dificuldade no acesso ou conhecimento da tecnologia e a falta de acompanhamento integral geraram redução de confiança no diagnóstico. Além disso, mostraram que o isolamento social pode comprometer o acesso à estimulação cognitiva e sobrecarregar as famílias no cuidado com esse paciente. Conclusão: Dado o exposto, pacientes com demência e seus cuidadores são populações vulneráveis que foram notadamente afetadas durante a pandemia. Esse estudo mostra a necessidade de intervenções em saúde, o manejo de sintomas psicológicos e comportamentais nesses pacientes e a importância de uma rede de apoio aos seus cuidadores.

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“…Dementia affects 900,000 people in the United Kingdom (UK) (Alzheimer's Society, 2021). The COVID-19 pandemic, which started in early 2020, generated unprecedented challenges for people with dementia and their carers with no, or significantly limited, access to day care and respite care services (Carers UK, 2022;Savla et al, 2021;Daley et al, 2022; Emma Ferguson-Coleman and Alys Young are both based at Social Research with Deaf People Group, The University of Manchester, Manchester, UK. Masterson-Algar et al, 2022).…”

Section: Introductionmentioning

confidence: 99%

“…Dementia affects 900,000 people in the United Kingdom (UK) (Alzheimer’s Society, 2021). The COVID-19 pandemic, which started in early 2020, generated unprecedented challenges for people with dementia and their carers with no, or significantly limited, access to day care and respite care services (Carers UK, 2022; Savla et al , 2021; Daley et al , 2022; Masterson-Algar et al , 2022). Requirements to shield for the most clinically vulnerable, plus restrictions in social contact, were in place in different forms for over 18 months, having a detrimental impact on family carer’s mental health and wellbeing (Di Gessa and Price, 2022).…”

Section: Introductionmentioning

confidence: 99%

“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

Ferguson-Coleman,

Young

2023

QAOA

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Purpose Deaf people, who are British Sign Language (BSL) users, are, at times, carers for their parent or spouse when they have dementia. This can be a challenging role for the wider population, but if the common language in service provision is not one you share, then this care can be impacted by the lack of formal structures that support the Deaf caring role. This study aims to explore the experiences of Deaf carers supporting people with dementia, in an unpaid role, during the COVID-19 pandemic to understand more about their potential support preferences. Design/methodology/approach Online interviews with seven Deaf carers sharing their experiences of supporting their family member with dementia happened during the first year of the COVID-19 pandemic. Interpretive phenomenological analysis was used to qualitatively examine each Deaf carers’ stories. Findings Findings included Deaf carers’ lack of access to information, surrendering their autonomy to hearing family members to communicate with health-care professionals, with overarching isolation within local communities and online. Findings show a widespread infrastructural failure to meet the linguistic and specific support needs of this minority population. Research limitations/implications Seven Deaf carers took part in this study. This means the findings may not be generalisable. Practical implications Health-care professionals and social care structures need to develop robust clear communication pathways for Deaf carers to receive the support needed to provide effective care. Social implications If health-care professionals undertake training about Deaf people and BSL, that will mean Deaf carers will receive effective support to be able to care for a person living with dementia. This means that their Deaf identity will be recognised within the mainstream and the care provided will be much more effective for the person with dementia. Originality/value To the best of the authors’ knowledge, these are the first interviews undertaken with Deaf carers of people with dementia during the COVID-19 pandemic and its subsequent lockdowns. Understanding everyday barriers and social care limitations in terms of language access will enable Deaf carers to assert their rights and for care professionals to adapt their communication to match the individuals involved in the care package.

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What factors have influenced quality of life in people with dementia and their family carers during the COVID-19 pandemic: a qualitative study

Cited by 13 publications

References 32 publications

Covid-19 pandemic influences relationships on innovation, environmental practices and social actions in enterprise: the theoretical framework

Covid-19 pandemic influences relationships on innovation, environmental practices and social actions in enterprise: the theoretical framework

Impactos da pandemia da COVID-19 em pacientes portadores de demências e seus cuidadores

“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

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