What is the lived experience of anxiety for people with Parkinson’s? A phenomenological study

Lovegrove, Chris; Bannigan, Katrina

doi:10.1371/journal.pone.0249390

Cited by 7 publications

(14 citation statements)

References 119 publications

(201 reference statements)

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“…PARKINSON'S DISEASE is a complex neurodegenerative disorder that affects people in very diverse ways and is the second most common neurological condition worldwide. 1 The management of Parkinson's disease for many years has focused largely on treating and improving motor symptoms -bradykinesia combined with either rigidity, resting tremor or both. 2 Non-motor symptoms -including anxiety and depression -typically pre-date the emergence of motor signs by years.…”

Section: Discussionmentioning

confidence: 99%

“…The NMSS covers 30 non-motor symptoms grouped into nine domains, providing a roadmap to assist quantifying the far-reaching burden of non-motor symptoms in people with Parkinson's disease. [1][2][3] The shortened version of the scale can be accessed online from Parkinson's UK (www.parkinsons. org.uk/sites/default/files/2021-04/ Fillable%20NMS%20questionnaire.…”

Section: Box 1 Vignette As Told By Tony and Jennymentioning

confidence: 99%

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Non-motor symptoms of Parkinson’s disease

Carroll¹,

Rossiter²,

Blanchard³

2021

Aust J Gen Pract

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Section: Discussionmentioning

confidence: 99%

Section: Box 1 Vignette As Told By Tony and Jennymentioning

confidence: 99%

Non-motor symptoms of Parkinson’s disease

Carroll¹,

Rossiter²,

Blanchard³

2021

Aust J Gen Pract

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“…To our knowledge, only one qualitative paper has explored the subjective experience of anxiety. Its findings highlighted the importance of anxiety in the subjective experience of PD; however, the study interviewed only six participants, and the causes and symptoms of anxiety described were diverse 33 . Our study uses a bigger sample across a larger age range to ask, “How do PWP perceive their anxiety?” and “How do these perceptions affect the maintenance and management of their anxiety?” The aim was to support investigation and treatment approaches by better understanding this important non-motor symptom of PD.…”

Section: Introductionmentioning

confidence: 92%

The experience of Anxiety for people with Parkinson’s disease

Blundell,

Grover,

Stott

et al. 2023

npj Parkinsons Dis.

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Anxiety is a common non-motor symptom of Parkinson’s disease (PD) associated with increased disability and reduced quality of life. However, anxiety is poorly understood, underdiagnosed, and undertreated. To date, little research has explored how anxiety is experienced by patients themselves. This study explored the experience of anxiety for people with Parkinson’s (PWP) to inform future research and interventions. Semi-structured interviews with 22 PWP (aged 43-80, 50% female) were conducted and analysed using inductive thematic analysis. Four main themes were extracted: conceptualising anxiety; anxiety and the body; anxiety and social identity; and coping with anxiety. Sub-themes revealed inconsistent perceptions: anxiety was in body and mind, part of disease and human nature, part of self-identity and a threat to it. The symptoms described were diverse. Many perceived their anxiety as more incapacitating than motor symptoms or capable of amplifying them, and described that anxiety restricted their lifestyle. All perceived anxiety as connected to PD, and ultimately persistent: dominant aspirations were coping and acceptance rather than cures, with medications strongly resisted. Findings highlight the complexity and high importance of anxiety for PWP. Implications for therapeutic approaches are discussed.

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“…This is a qualitative study using interpretative phenomenological analysis, in line with Heidegger's principles [12][13][14][15].…”

Section: Designmentioning

confidence: 99%

Personal Tools and Psychosocial Resources of Resilient Gender-Based Violence Women

Montes

Liria

Fernández

et al. 2021

IJERPH

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Gender-based violence is considered a serious social and public health problem. Overcoming this situation implies a process that results in the favorable biopsychosocial rehabilitation of the resilience of women. The objective of this study was to analyze the tools, resources and personal and psychosocial mechanisms used by women survivors of gender-based violence. The design was an interpretative phenomenology. It was carried out with 22 women who have overcome gender-based violence. Data were collected through personal interviews and narration. The results were grouped into four themes: “Process of violence”, “Social resources for coping and overcoming GBV”, “Personal tools for coping and overcoming GBV” and “Feelings identified, from the abuse stage to the survival stage”. Several studies concluded that overcoming abuse is influenced by the women’s social network, and it can be the action of these people determining their survival to gender violence. Despite the recognized usefulness of these available resources, it would be desirable to strengthen them in order to be able to drive more women toward survival, assuming a strengthening of coping and overcoming, without forgetting the importance of other support mechanisms, such as their family and group therapies.

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What is the lived experience of anxiety for people with Parkinson’s? A phenomenological study

Cited by 7 publications

References 119 publications

Non-motor symptoms of Parkinson’s disease

Non-motor symptoms of Parkinson’s disease

The experience of Anxiety for people with Parkinson’s disease

Personal Tools and Psychosocial Resources of Resilient Gender-Based Violence Women

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