What once was sick is now bad: The shift from victim to deviant identity for those diagnosed with fetal alcohol spectrum disorder

Dej, Erin

doi:10.29173/cjs6912

Cited by 18 publications

(11 citation statements)

References 9 publications

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“…Consequently, substance ‘users’ have been framed as the ‘problem’ requiring government intervention [ 46 , 47 ]. Converging with such constructions is the prevailing assumption, permeating the media, FASD prevention campaigns and public discourse, that FASD is predominantly an ‘Aboriginal problem’ [ 48 - 50 ]. Importantly, an IBPA Framework provides an innovative structure to examine how such discourse can reinforce relations of equity for people who use substances, while also providing transformative opportunities to rectify such tendencies.…”

Section: Resultsmentioning

confidence: 99%

An intersectionality-based policy analysis framework: critical reflections on a methodology for advancing equity

Hankivsky

Grace

Hunting³

et al. 2014

Int J Equity Health

329

203

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IntroductionIn the field of health, numerous frameworks have emerged that advance understandings of the differential impacts of health policies to produce inclusive and socially just health outcomes. In this paper, we present the development of an important contribution to these efforts – an Intersectionality-Based Policy Analysis (IBPA) Framework.MethodsDeveloped over the course of two years in consultation with key stakeholders and drawing on best and promising practices of other equity-informed approaches, this participatory and iterative IBPA Framework provides guidance and direction for researchers, civil society, public health professionals and policy actors seeking to address the challenges of health inequities across diverse populations. Importantly, we present the application of the IBPA Framework in seven priority health-related policy case studies.ResultsThe analysis of each case study is focused on explaining how IBPA: 1) provides an innovative structure for critical policy analysis; 2) captures the different dimensions of policy contexts including history, politics, everyday lived experiences, diverse knowledges and intersecting social locations; and 3) generates transformative insights, knowledge, policy solutions and actions that cannot be gleaned from other equity-focused policy frameworks.ConclusionThe aim of this paper is to inspire a range of policy actors to recognize the potential of IBPA to foreground the complex contexts of health and social problems, and ultimately to transform how policy analysis is undertaken.

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Section: Resultsmentioning

confidence: 99%

An intersectionality-based policy analysis framework: critical reflections on a methodology for advancing equity

Hankivsky

Grace

Hunting³

et al. 2014

Int J Equity Health

329

203

View full text Add to dashboard Cite

show abstract

“…Consequently, substance 'users' have been framed as the 'problem' requiring government intervention [46,47]. Converging with such constructions is the prevailing assumption, permeating the media, FASD prevention campaigns and public discourse, that FASD is predominantly an ' Aboriginal problem' [48][49][50]. Importantly, an IBPA Framework provides an innovative structure to examine how such discourse can reinforce relations of equity for people who use substances, while also providing transformative opportunities to rectify such tendencies.…”

Section: Case 3: Fetal Alcohol Spectrum Disordermentioning

confidence: 99%

An Intersectionality-Based Policy Analysis Framework: Critical Reflections on a Methodology for Advancing Equity

Hankivsky

Grace

Hunting

et al. 2019

The Politics of Intersectionality

160

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Introduction: In the field of health, numerous frameworks have emerged that advance understandings of the differential impacts of health policies to produce inclusive and socially just health outcomes. In this paper, we present the development of an important contribution to these effortsan Intersectionality-Based Policy Analysis (IBPA) Framework. Methods: Developed over the course of two years in consultation with key stakeholders and drawing on best and promising practices of other equity-informed approaches, this participatory and iterative IBPA Framework provides guidance and direction for researchers, civil society, public health professionals and policy actors seeking to address the challenges of health inequities across diverse populations. Importantly, we present the application of the IBPA Framework in seven priority health-related policy case studies. Results: The analysis of each case study is focused on explaining how IBPA: 1) provides an innovative structure for critical policy analysis; 2) captures the different dimensions of policy contexts including history, politics, everyday lived experiences, diverse knowledges and intersecting social locations; and 3) generates transformative insights, knowledge, policy solutions and actions that cannot be gleaned from other equity-focused policy frameworks. Conclusion: The aim of this paper is to inspire a range of policy actors to recognize the potential of IBPA to foreground the complex contexts of health and social problems, and ultimately to transform how policy analysis is undertaken.

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“…; Kelm ; Tang and Browne ), it is likely not a surprise that their children, by extension, are experiencing the healthcare system differently. Dej () notes that the original characterization of FASD carefully used “scientific rhetoric to mask the racialization of the diagnosis” (Dej : 139). Taken together, the fact that children of Aboriginal women are more likely to be diagnosed with FASD than their White counterparts (Oldani ) is not surprising if one considers not only the racialized medical practices at play but also the combined effects of colonialism and structural inequality.…”

Section: What Is Fasd?mentioning

confidence: 99%

Fictions of Prevention: Fetal Alcohol Spectrum Disorder and Narratives of Responsibility

Stewart

2016

J Anthropology North Am

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In February 2016, the Center for Disease Control (CDC) sparked international outrage when it released a press release about safe drinking levels for women. In the name of preventing alcohol-exposed pregnancies, the Center asserted that all women who are not sterile are at risk of creating a child with Fetal Alcohol Spectrum Disorder (FASD) if they drink alcohol and are not using contraception. The supporting info graphic also asserted that any woman who drank (while not using contraception) was at risk for a range of negative outcomes including sexually transmitted diseases, fertility problems, and injuries/violence. The press release and info graphic drew fire across social media and in the blogosphere (Tolentino 2016). While the problematic graphic was replaced (Taylor 2016), the message resonated. Criticism focused on questions about the infringement on women's reproductive rights as the CDC appeared to see all women's bodies as always already the vessels of the unborn. This eruption is the latest in a longer story about what it means to frame a disability as preventable. This article puts at the center of the analysis the prevention narratives that surround FASD by looking at contemporary legislative approaches in the US and Canada to address FASD. This article analyzes the fictions of prevention that surround FASD as these narratives not only serve to strip the very context within which the medical phenomenon occurs but also concurrently inform potentially damaging programs, practices, and policies including proposed legislative changes in North America. These legislative changes reflect the sentiment that women's bodies should be sites of intervention, even detention, in the name of reproducing "healthy," productive (future) subjects. We Start in Canada"It is not 100% preventable," Judy replied to my question, sternly adding, "it's not a very widely understood disability in the community." Judy was one of dozens of people I was interviewing in Canada's midwest about Fetal Alcohol Spectrum Disorder (FASD) and how it was understood in the justice system. Working for an advocacy group, Judy was in the business of assisting individuals and families with FASD to access resources and needed supports. Judy's comment was in direct opposition to most prevention messages that indicated FASD was 100% preventable. For Judy, this prevention narrative is flawed. FASD was not 100% preventable because Judy would argue that there are many contributing factors when discussing FASD, not least of which is the life circumstances of the woman, the supports available, and overall awareness of the pregnancy -all of which can be easily erased from the discussion when FASD is framed as 100% preventable.Judy was firm in her comments that day. Firm, perhaps, for a number of reasons not least of which was that she was rightly suspicious of a researcher who appeared focused on FASD in the justice system; research that can produce slippery associations and causal relationships between FASD and criminal activity. I have since come to bett...

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What once was sick is now bad: The shift from victim to deviant identity for those diagnosed with fetal alcohol spectrum disorder

Cited by 18 publications

References 9 publications

An intersectionality-based policy analysis framework: critical reflections on a methodology for advancing equity

An intersectionality-based policy analysis framework: critical reflections on a methodology for advancing equity

An Intersectionality-Based Policy Analysis Framework: Critical Reflections on a Methodology for Advancing Equity

Fictions of Prevention: Fetal Alcohol Spectrum Disorder and Narratives of Responsibility

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