When Words Fail: Providing Effective Psychological Treatment for Depression in Persons with Aphasia

Pietro, Mary Jo Santo; Marks, Donald R.; Mullen, Ashlyne

doi:10.1007/s10880-019-09608-4

Cited by 24 publications

(13 citation statements)

References 52 publications

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“…We know both that the incidence of mental health problems among PWA is high and that psychological care is effective, (Baker et al., 2017; Northcott, Burns, Simpson, & Hilari, 2015; Northcott, Simpson, Moss, Ahmed, & Hilari, 2018; Santo Pietro, Marks, & Mullen, 2019), however the results illustrate a lack of consistent support, in keeping with previous Irish research (Community Services Subgroup of the National Stroke Working Group, 2011; Horgan et al., 2014; McElwaine et al, 2016). There is a clear need for more equitable, standardised access to communicatively accessible support for depression and other mental health problems for PWA.…”

Section: Discussionmentioning

confidence: 99%

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Manning

Cuskelly

Russ

et al. 2020

Health Soc Care Community

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Living well with post-stroke aphasia is supported by responsive, collaborative heath and related services, aphasia information and training for people with aphasia (PWA) and their social networks, and opportunities to contribute and participate autonomously in their communities. Several international surveys indicate shortcomings in the provision of long-term support and, in Ireland, while there is a lack of data around service provision for PWA, there is evidence that post-acute stroke services are fragmented and under-resourced. The aim of this study was to survey Speech & Language Therapists (SLTs), due to their unique role in aphasia management, to un

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Section: Discussionmentioning

confidence: 99%

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Manning

Cuskelly

Russ

et al. 2020

Health Soc Care Community

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“…Though the rate of depressive disorders in PWA is substantially higher compared to other stroke populations and the general public (Ashaie et al, 2019;Hunting Pompon et al, 2019;Laures-Gore et al, 2020), mental health support for PWA is in relatively short supply in the United States and other countries (Santo Pietro et al, 2019). As adjuvant mental health interventions appropriate for PWA emerge (see Baker et al, 2018), clinicians can continue to collaborate with colleagues across disciplines, and refer clients and caregivers to appropriate clinical professionals (e.g., primary care physicians, mental health professionals) and support resources (e.g., stroke groups, online networks) for additional support.…”

Section: Discussionmentioning

confidence: 98%

“…Most important among these approaches are the clinician's authentic effort to foster connection with, understanding of, and unconditional positive regard for each client and family. This support may be the only source of mental health support that many PWA receive in the absence of medical and mental health professionals with expertise in aphasia and/or supportive communication strategies (Santo Pietro et al, 2019). While we may only work with each client and family for a relatively short period of time, moments of attending, empathizing, listening, reflecting, acknowledging, educating, reframing, coaching, and encouraging may spark growth and change that extend well beyond the clinic room.…”

Section: Discussionmentioning

confidence: 99%

“…At the same time, SLPs often feel unprepared to address distressing topics with clients and families. In addition to confusion about boundaries around SLPs' counseling activities, 1 some SLPs are also aware of the substantial gap between the psychological needs of PWA and the availability of appropriate mental health support (Franklin et al, 2018;Santo Pietro et al, 2019;Walsh et al, 2015). PWA experience higher levels of depression compared to stroke survivors with no aphasia and the adult population at large (Ashaie et al, 2019;Mitchell et al, 2017), notable chronic stress (Hilari, 2011;Laures-Gore et al, 2007), and diminished quality of life (Cruice et al, 2010;Hilari et al, 2012).…”

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confidence: 99%

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Basic Counseling Skills: Working With People With Aphasia and Their Families

Pompon

2021

Perspect ASHA SIGs

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Purpose People with aphasia (PWA) and their families experience dramatic changes to many facets of life following stroke or other brain injury. With these changes comes complex loss and grief that can lead to chronic stress and depression, and impact recovery and rehabilitation. Clinicians working with PWA are often unsure how to best address these experiences and reactions. This tutorial introduces an approach to building the therapeutic alliance and navigating challenging conversations with clients and families using basic counseling skills that can be adapted to varying situations and clinical contexts. In addition to demonstrating each skill using example scenarios (Part 1), these skills are applied to the evolving stages of crisis and recovery experienced by many clients with communication impairment and their families—from injury onset to adjustment to chronic aphasia (Part 2). Conclusions Clinicians can adapt a set of basic counseling skills to promote effective therapeutic relationships and change in the lives of their clients across the contexts of recovery and rehabilitation. Although the clinician and client may work together for a relatively limited period of time, these flexible skills can help galvanize client engagement and participation in clinical activities, yield high-quality client information for treatment planning, and motivate clients as they navigate life with aphasia.

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“…As a result, they are also exposed to the risk of losing contact with friends and their wider social network (Fotiadou et al, 2014;Vickers, 2010;Northcott & Hilari, 2011, Ellis et al, 2019. Lack of involvement in the social context and the associated emotional burden lead to a considerable impairment of quality of life of PWA (Hilari et al, 2012;Lee et al, 2015;Santo Pietro et al, 2019). In addition, mobility is often reduced, which further restricts participation and quality of life (Lee et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

Peer-to-peer Support: Digital Networking in Aphasia to Improve Quality of Life (PeerPAL) - Study Protocol for App Development and Evaluation

Kurfess¹,

Corsten²,

Knieriemen³

et al. 2021

Preprint

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Background: People with aphasia (PWA) often have a reduced quality of life. Nevertheless, there are currently only a few specific services that respond to this problem. Hence, there is a pressing need for action to improve participation and well-being of people with aphasia. An adapted social network could be a solution. Well-being could be increased by exchanging experiences with peers in a similar situation. Moreover, comprehensive digital coverage would also be possible in rural and underserved areas. This digital social network should be adapted to the specific needs of PWA. Therefore, a participatory, agile process with the involvement of the target group should be adopted.Aim: The aim is to develop and evaluate a social media platform as a smartphone app to support the social integration of PWA and to improve their quality of life. In addition to the digital exchange, face-to-face meetings between PWA should be stimulated.Design: The study will be conducted in a randomised pretest-posttest control group design with follow-up testing. The participants will be randomly assigned to the experimental intervention (36 participants) or the control intervention (36 participants). The primary outcome is quality of life, measured with the SAQOL-39. At all measurement times, psychological well-being is recorded with the help of two measuring instruments (GHQ-12 & DISCs). The secondary outcome is the recording of social contacts and activities as well as associated emotions, registered in a structured diary. In addition, communication skills (measured with the CPIB) and social support (recorded with the F-SozU) will be examined. Method: During the first project phase, a user-centred, agile development process will be adopted to design the app. The target group will be involved in the app development in a participatory manner. A workshop is planned for the users of the app. In the second phase, the usability and user-friendliness of the app will first be evaluated in a feasibility study. Subsequently, in the main study, the app will then be tested by the target group for 4 months.Discussion: The app developed in the research project is the first social network that is tailored to the needs and capabilities of PWA. It aims to enable better exchange between PWA to improve social participation and quality of life.

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When Words Fail: Providing Effective Psychological Treatment for Depression in Persons with Aphasia

Cited by 24 publications

References 52 publications

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Basic Counseling Skills: Working With People With Aphasia and Their Families

Peer-to-peer Support: Digital Networking in Aphasia to Improve Quality of Life (PeerPAL) - Study Protocol for App Development and Evaluation

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