Why go online when you have pain? A qualitative analysis of teenagers’ use of the Internet for pain management advice

Henderson, Ellen M; Keogh, Edmund; Eccleston, Christopher

doi:10.1111/cch.12072

Cited by 31 publications

(23 citation statements)

References 14 publications

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“…() also found that restrictions of daily living, self‐reported medication use, and doctor's visits increased with the age of children over 10 years, which supports the finding that pain increases as children age (LeResche, Mancl, Drangsholt, Saunders, & Korff, ). Surprisingly, although comfortable with online resources, few adolescents searched the Internet for information related to coping with pain during the experience (Henderson, Keogh, & Eccleston, ).…”

Section: Background and Significancementioning

confidence: 99%

Pain, Coping, and Sleep in Children and Adolescents With Sickle Cell Disease

Graves

Jacob

2014

Child Adoles Psych Nursing

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Section: Background and Significancementioning

confidence: 99%

Pain, Coping, and Sleep in Children and Adolescents With Sickle Cell Disease

Graves

Jacob

2014

Child Adoles Psych Nursing

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“…Overall, the congruency between philosophical perspectives, methodologies, and methods used was strong. The exceptions were two studies with an unclear congruity between philosophical perspective and methodology [32,33]. The most poorly addressed issue was the influence of the researcher on the research and vice versa, and five of the nine studies included did not address this issue [32,[34][35][36][37].…”

Section: Quality Appraisalmentioning

confidence: 99%

Section: Metasummariesmentioning

confidence: 99%

“…In five of the nine studies [32][33][34][35][36][37][41][42][43] headache was the focused pain condition, and one study [42] included participants with various pain conditions in addition to headache. In the remaining three studies type of pain was not described [32,35,41]. All the studies were conducted in a Western cultural context, with three in Canada [35,37,41] and six in Europe (UK, Denmark, and Sweden) [32,33,36,[42][43][44].…”

Section: Metasummariesmentioning

confidence: 99%

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The experiences of a nonclinical set of adolescents and young adults living with persistent pain: a qualitative metasynthesis

Fegran

Johannessen

Ludvigsen

et al. 2019

Preprint

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Background Around 15–30% of adolescents and young adults (AYAs) suffer from persistent or chronic pain. Strategies to manage pain in different populations have been well described; however, pain is an increasing problem among AYAs, and the use of over-the-counter medications is increasing. The aim of this study was to identify and synthesize evidence from qualitative primary studies on how AYAs in a nonclinical population experience living with persistent pain.Method A qualitative metasynthesis guided by Sandelowski and Barroso’s guidelines was used to synthesize the included studies. The electronic databases Medline, Embase, Cinahl, Psycinfo, Mednar, and ProQuest were searched for studies published in English or Nordic languages from January 2005 to April 2019. Inclusion criteria were adolescents aged 13–18 and young adults aged 19–24 with first-hand experience of living with persistent, recurrent, or episodic nonclinical pain in any body site. Pain associated with a medical diagnosis, malignant diseases, medical procedures or testing, or sport activities was excluded.Results Of 2254 screened records, nine studies including 184 participants (127 female and 57 male aged 11–28 years) with pain from a nonclinical population were analyzed into metasummaries and a metasynthesis. In five of the nine studies, headache was the focused pain condition, while three of the studies did not specify the type of pain. All studies were conducted in a Western cultural context. The metasynthesis revealed that the participants’ experiences were characterized by three themes: 1) juggling pain with everyday life; 2) exploring sources of information to manage pain; and 3) striving to find relief.Conclusion These AYAs experienced a need to juggle dealing with pain with everyday life and explored information on how to manage pain from various sources. Their management of pain was influenced by family norms, and they described how they were striving to find relief from pain.

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“…Studies show that easy internet access has a great influence on people's habits and behaviors, including those relating to health issues. 1,2 The internet has been revealed to be a valuable resource for selfcare, enabling access to information and promoting interaction between professionals, caregivers and health care service users ranging from chronic patients to people who are just interested in health information. [3][4][5][6] The internet provides free access for everyone to a huge arsenal of medical information.…”

Section: Introductionmentioning

confidence: 99%

Cross-cultural adaptation of the Cyberchondria Severity Scale for Brazilian Portuguese

Silva

Andrade

Silva

et al. 2016

Trends Psychiatry Psychother.

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Introduction:The internet has proven to be a valuable resource for self-care, allowing access to information and promoting interaction between professionals, caregivers, users of health care services and people interested in health information. However, recurring searches are often related to excessive health anxiety and a phenomenon known as cyberchondria can have impacts on physical and mental health. Within this background, a Cyberchondria Severity Scale has been developed to differentiate healthy and unhealthy behavior in internet searches for health information, based on the following criteria: compulsion, distress, excesses, and trust and distrust of health professionals. Objective: To conduct cross-cultural adaptation of the Cyberchondria Severity Scale for Brazilian Portuguese, because of the lack of an appropriate instrument for Brazil. Methods: This study was authorized by the original author of the scale. The process was divided into the following four steps: 1) initial translation, 2) back-translation, 3) development of a synthesized version, and 4) experimental application. Results: Translation into Brazilian Portuguese required some idiomatic expressions to be adapted. In some cases, words were not literally translated from English into Portuguese. Only items 7, 8, 12, 23 and 27 were altered, as a means of both conforming to proper grammar conventions and achieving easy comprehension. The items were rewritten without loss of the original content. Conclusion: This paper presents a translated version of the Cyberchondria Severity Scale that has been semantically adapted for the Brazilian population, providing a basis for future studies in this area, which should in turn contribute to improved understanding of the cyberchondria phenomenon in this population.

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Why go online when you have pain? A qualitative analysis of teenagers’ use of the Internet for pain management advice

Abstract: Counter to many positive reports of the health benefits of Internet use during information seeking, its value is questionable to some adolescents. Typical experience was anxiety provoking, unlikely to yield helpful results, and wasteful comparative to off-line resources for pain.

Cited by 31 publications

References 14 publications

Pain, Coping, and Sleep in Children and Adolescents With Sickle Cell Disease

Pain, Coping, and Sleep in Children and Adolescents With Sickle Cell Disease

The experiences of a nonclinical set of adolescents and young adults living with persistent pain: a qualitative metasynthesis

Cross-cultural adaptation of the Cyberchondria Severity Scale for Brazilian Portuguese

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