World Workshop on Oral Medicine VI: Patient-reported outcome measures and oral mucosal disease: current status and future direction

Ríordáin, Rícheal Ní; Shirlaw, Penelope; Alajbeg, Ivan; Zamel, Ghada Y. Al; Fung, Pok Lam; Yuan, Anna; McCreary, Christine; Stoopler, Eric T.; Rossi, Scott S. De; Lodi, Giovanni; Greenberg, Martin S.; Brennan, Michael T.

doi:10.1016/j.oooo.2015.01.023

Cited by 42 publications

(35 citation statements)

References 135 publications

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“…More recently, studies have included patient‐reported outcomes (PROs), typically self‐reports of pain severity using visual analogue scales (VAS; Thongprasom et al, ), or more detailed scoring systems, such as the Oral Disease Severity Score (ODSS; Escudier et al, ) and others (Piboonniyom, Treister, Pitiphat, & Woo, ). A few studies have incorporated a more detailed assessment of the impact of OLP on an individual's daily life through the inclusion of (oral) health‐related quality‐of‐life scales (Hegarty, Hodgson, Lewsey, & Porter, ; McGrath, Hegarty, Hodgson, & Porter, ; Ni Riordain et al, ). Recently, the Chronic Oral Mucosal Disease Questionnaire (COMDQ) was developed for use with chronic oral mucosal conditions, including OLP (Ni Riordain & McCreary, , ).…”

Section: Introductionmentioning

confidence: 99%

Novel Oral Lichen Planus Symptom Severity Measure for assessing patients’ daily symptom experience

et al. 2019

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Objective A novel Oral Lichen Planus Symptom Severity Measure was developed as a clinical outcome assessment of the daily symptom experience of patients with oral lichen planus. Methods A literature review and expert input were followed by open‐ended concept elicitation interviews with 17 adults with oral lichen planus in the United States and Ireland. Item content was generated, and the interviews continued until input saturation was reached. The final electronic version of the measure was cognitively debriefed in 6 US patients and subsequently translated and linguistically validated in Germany and Denmark. Results Concept elicitation interviews demonstrated content validity and saturation in identifying symptoms and daily activities that generate symptoms in patients with oral lichen planus. The content and electronic daily diary format demonstrated content validity during cognitive debriefing interviews. Linguistic validation of the 7‐item Oral Lichen Planus Symptom Severity Measure in Germany and Denmark confirmed the content validity of the German and Danish versions. Conclusions Qualitative research methods generated evidence that the 7‐item Oral Lichen Planus Symptom Severity Measure version 1.0 is a well‐defined assessment tool to characterize the severity, specificity and variations of symptoms in patients with oral lichen planus.

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Section: Introductionmentioning

confidence: 99%

Novel Oral Lichen Planus Symptom Severity Measure for assessing patients’ daily symptom experience

et al. 2019

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“…Despite the fact that previous studies have suggested that GSSS are effective in stimulating salivary secretion, to our knowledge very few studies have looked upon the effects of these products on PROs (Ní Ríordáin et al, ). In this study, however, interpreting the PROs must be done with caution since due to the bidirectional nature of scores, a simple comparison of aggregate answers may be insufficient to provide accurate information about the real meaning of the data (Tsakos et al, , ).…”

Section: Discussionmentioning

confidence: 99%

Patient‐related outcomes in Sjögren syndrome treated with stimulants of salivary secretion: Randomized clinical trial

et al. 2019

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Objectives To investigate the impact of gustatory stimulants of salivary secretion (GSSS) on Sjögren's syndrome patients’ self‐perception of xerostomia, oral health‐related quality of life (OHRQoL) and salivary secretion. Methods A total of 110 Sjögren's syndrome patients were randomly allocated to be treated with either a malic acid lozenge or a citric acid mouthwash and then crossed over. Before and after the interventions, the Xerostomia Inventory 5 (SXI‐5‐PL) and the Oral Health Impact Profile (OHIP‐14‐PT) questionnaires (both in the Portuguese language) were administered to patients. Unstimulated, mechanical and gustatory‐stimulated salivary flows were determined. Repeated measures and between‐subject analyses were performed. Statistical significance was set at 5%. Results After the intervention and within each group, both GSSS elicited a reduction in the SXI‐5‐PL and OHIP‐14‐PT scores and an increase in salivary output, significant in the malic acid lozenge group. The malic acid treatment resulted in a greater effect size and percentage improvement than citric acid mouthwash. The malic acid lozenge also produced a significant greater salivary output than the citric acid rising solution. Conclusions In Sjögren's syndrome patients, lozenges containing malic acid increased saliva production and xerostomia relief, resulting in improved quality of life.

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“…While a clinician‐centred RAS‐specific clinical scoring system is available (Tappuni, Kovacevic, Shirlaw, & Challacombe, ), very few studies have focussed upon the use and the quality properties of PROMs in patients with RAS. Three narrative reviews have reported on the use of PROMs in patients with a range of oral mucosal diseases (Ni Riordain & McCreary, ; Ni Riordain et al., ; Wiriyakijja, Fedele, Porter, Mercadante, & Ni Riordain, ). There remains, however, no critical assessment of the quality properties of PROMs in patients with RAS.…”

Section: Introductionmentioning

confidence: 99%

Patient‐reported outcome measures in recurrent aphthous stomatitis: A critical assessment of quality properties

et al. 2017

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World Workshop on Oral Medicine VI: Patient-reported outcome measures and oral mucosal disease: current status and future direction

Cited by 42 publications

References 135 publications

Novel Oral Lichen Planus Symptom Severity Measure for assessing patients’ daily symptom experience

Novel Oral Lichen Planus Symptom Severity Measure for assessing patients’ daily symptom experience

Patient‐related outcomes in Sjögren syndrome treated with stimulants of salivary secretion: Randomized clinical trial

Patient‐reported outcome measures in recurrent aphthous stomatitis: A critical assessment of quality properties

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