2016
DOI: 10.1016/j.socscimed.2016.08.028
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‘You have all those emotions inside that you cannot show because of what they will cause’: Disclosing the absence of one's uterus and vagina

Abstract: This article examines young women's experiences of telling others that they have no uterus and no, or a so-called small, vagina - a condition labelled 'congenital absence of uterus and vagina', which falls within the larger category of 'atypical' sex development. Our aim is to investigate how affective dissonances such as fear and frustration are expressed in young women's narratives about letting others know about their 'atypical' sex development, and how these women narrate desired steps to recognition. By d… Show more

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Cited by 12 publications
(7 citation statements)
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References 27 publications
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“…We understand that many people with variations in sex characteristics find communicating with others challenging, especially when it comes to talking to peers, such as friends and classmates and (potential) partners (Jones et al 2016, Sani et al 2019, Schweizer et al 2017, Frank 2018, Liao et al 2010, Engberg et al 2016, Carroll et al 2020. Some people fear being devalued (Alderson, Madill, and Balen 2004) or rejected (Ernst et al 2016, Frank 2018, Guntram and Zeiler 2016 and some have experienced negative or unhelpful responses from others (Jones et al 2016, Ernst et al 2016, Malouf et al 2010. These experiences have led some to avoid or limit relationships with others (Guth et al 2006, MacKenzie, Huntington, andGilmour 2009).…”
Section: Making Things 'Talkable': Young People's (Communication) Needsmentioning
confidence: 99%
“…We understand that many people with variations in sex characteristics find communicating with others challenging, especially when it comes to talking to peers, such as friends and classmates and (potential) partners (Jones et al 2016, Sani et al 2019, Schweizer et al 2017, Frank 2018, Liao et al 2010, Engberg et al 2016, Carroll et al 2020. Some people fear being devalued (Alderson, Madill, and Balen 2004) or rejected (Ernst et al 2016, Frank 2018, Guntram and Zeiler 2016 and some have experienced negative or unhelpful responses from others (Jones et al 2016, Ernst et al 2016, Malouf et al 2010. These experiences have led some to avoid or limit relationships with others (Guth et al 2006, MacKenzie, Huntington, andGilmour 2009).…”
Section: Making Things 'Talkable': Young People's (Communication) Needsmentioning
confidence: 99%
“…These men expressed a need, or even an obligation, to disclose aspects of their body to a potential new partner. Fear of disclosure is a common theme in studies of single men who have been treated for prostate cancer (Matheson et al, 2017), and illustrates a broader theme of 'coming out' about one's sexuality or 'atypical' body (Guntram & Zeiler, 2016).…”
Section: Relational Repair Workmentioning
confidence: 99%
“…This concern was raised in many of the interviews when the interviewees envisaged future relationships or talked about how they had disclosed their infertility to their present partner (see also Guntram and Zeiler, 2016). Annie described that a partner ended their relationship because he had found her infertility hard and Tess underscored that although she does not consider alternative routes to parenthood ‘unnatural’, others do.…”
Section: Resultsmentioning
confidence: 99%