Young People’s Experiences in Youth-Led Participatory Action Research for Hiv/Aids Prevention

Goto, Keiko; Tiffany, Jennifer; Pelto, Gretel H.; Pelletier, David

doi:10.18357/ijcyfs34201211484

Cited by 3 publications

(5 citation statements)

References 16 publications

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“…The young citizen scientists also described relationships with the people they conducted research on as forming part of their experiences [ 34 , 51 , 54 , 56 ], ranging from an interest in the research subjects’ stories [ 34 ] to understanding that the citizen scientists and the research subjects have ‘personal connections and shared community and/or cultural knowledge’ [ 54 ]. The young citizen scientists in Goto [ 56 ] saw the importance of these connections in discussing HIV/Aids:…”

Section: Resultsmentioning

confidence: 99%

“…‘We have professionals that are very judgmental. “You should not be having sex, you should go to church.” It is better to train young persons.’ (Youth researcher) p401 [ 56 ]…”

Section: Resultsmentioning

confidence: 99%

“…This synthesis defines power as having the ’capacity and opportunity to fulfil or obstruct personal, relational, or collective needs’ [ 57 ]. Empowerment is noted as part of the participant experience in most studies [ 28 , 30 – 33 , 35 , 37 , 40 , 44 , 48 , 49 , 51 , 54 , 56 , 58 ]. Citizen scientists felt they were empowered by becoming citizen scientists in a number of ways, e.g.…”

Section: Resultsmentioning

confidence: 99%

“…Planning for, including and encouraging reflection was evident across the studies [ 32 , 38 – 41 , 45 , 47 , 51 – 54 , 56 ], which was reported to lead to improved personal growth. In Fowler’s [ 39 ] study, reflection was planned to focus on the citizen scientists’ skills development and learning needs.…”

Section: Resultsmentioning

confidence: 99%

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Exploring children and young people’s experience of participating in citizen science–A qualitative evidence synthesis

Frazer,

Creaser,

Tatterton

et al. 2024

PLoS ONE

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Objective Citizen science with young people is becoming increasingly popular, and understanding their experience is valuable as it can improve research through improved participant motivation/ retention, alongside greater insight. The participants can benefit through opportunities to improve self-efficacy, learning, communication, and relationships. However, studies that explore young people’s experience of participating in citizen science have not been synthesised. Methods This qualitative thematic synthesis aimed to combine the literature on young citizen scientists’ experience of participating in citizen science research studies. Seven databases, Google Scholar and The Journal of Citizen Science Theory and Practice were searched from 2012 to January 2022 and updated in May 2023. The screening included identifying articles by scanning titles and abstracts and, finally, full texts and selecting the articles using inclusion and exclusion criteria. The study findings were synthesised using inductive thematic synthesis (Prospero registration CRD42022299973). Results Out of 3856 identified articles, 33 studies focusing on the participant experience were included in the synthesis. These papers were coded inductively. The resulting analytical structures were discussed and finalised. The researchers identified three main themes representing aspects of participant experience: relationships, power and personal growth, and three interwoven connecting themes: communication, self-efficacy and decision-making. An illustration of this would be communication bridging relationships and personal growth. As the citizen scientists’ communication skills developed through personal growth, their relationships changed both with the project, with the researchers and with wider stakeholders outside the project such as school staff. Conclusion These findings provide a comprehensive understanding of participant experience and how this can be used to inform future citizen science projects to facilitate a positive participant experience.

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Section: Resultsmentioning

confidence: 99%

“…‘We have professionals that are very judgmental. “You should not be having sex, you should go to church.” It is better to train young persons.’ (Youth researcher) p401 [ 56 ]…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Exploring children and young people’s experience of participating in citizen science–A qualitative evidence synthesis

Frazer,

Creaser,

Tatterton

et al. 2024

PLoS ONE

View full text Add to dashboard Cite

show abstract

“…Not only do they mentor the young people, but they also increase the accountability of adults, thereby, attempt to balance the power dynamic and ensure the process centers the needs and the voice of young people at best. Through the City Caravan, they were really the boots on the ground with the other young researchers-holding the process together, boosting morale, supporting and motivating their peers to follow through, as well as addressing any internal conflicts or issues that came up (GOTO et al, 2012).…”

Section: Supportive Youth Networkmentioning

confidence: 99%

Jinka Sawaal, Unka Netrutva: Fronting People and Communities in Participatory Research With Young People

TAURO¹

2023

OSQ

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Research is not a straight-forward, neutral process of gathering, analyzing and translating information into 'truth' or 'knowledge' . It is layered and loaded with much more. As the prominent scholar Foucault (1977) states, "Truth is a thing of this world: it is produced only by virtue of multiple forms of constraint", highlighting the inseparable role of knowledge and 'truth' from power relations and discourses within societies, and that it is in fact constituted from it (apud HEWETT, 2004, p.3). Thus, research can be seen as a process of power struggle. Decolonizing research is thus an attempt to acknowledge, credit and validate the existence of multiple truths, ways of knowing and myriad ways of using the outcomes to impact communities. Participatory research is a key milestone to decolonizing research where the 'researched' become active participants in all steps of the process. While this is transformative, it also means that participatory research has power dynamics that are intrinsic to the collaborative process (MCDONALD, 2021). This paper attempts to highlight a model of participatory research with youth from urban poor communities in India, examining the critical elements of the process that make it distinctly empowering and challenging of mainstream processes, while also reflecting on the challenges and dilemmas that emerged from this process. KeywordsParticipatory research; Decolonizing methods; Youth; Urban poor communities. Jinka Sawaal Unka Netrutva: O papel de liderança dos indivíduos e das comunidades em pesquisa participativa com jovens na Índia ResumoA pesquisa não é um processo direto e neutro de coletar, analisar e traduzir informações em "conhecimento". Como afirma o proeminente estudioso Foucault (1977), ao destacar o papel inseparável entre o conhecimento e a 'verdade' nas relações de poder e nos discursos (FOUCAULT apud HEWETT, 2004, p.3), "a verdade é uma produção deste mundo, a partir de múltiplas formas de coerção". A pesquisa decolonial é, portanto, uma tentativa de reconhecer, creditar e validar a existência de múltiplas verdades, conhecimentos e metodologias, visando impactar direta-

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The experience of youth-participatory action research in a social innovation lab: A methodological and organizational approach

Canas,

Booth,

Pervez

et al. 2023

Action Research

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Based on the theory and quality criteria of Youth-Participatory Action Research (Y-PAR), youth and adult co-researchers at a social innovation lab in Ontario, Canada, have undertaken various knowledge generation and action activities for the purpose of supporting youth mental health and wellbeing among transitional-age youth (ages 16–25). We describe the methodological and organizational approach employed in this undertaking, including aspects of the social innovation model to support the action components of Y-PAR. We draw on Bradbury-Huang’s (2010) seven choice points for quality in action research to structure this collective reflection. Our experiences illustrate the tensions and opportunities arising from housing a Y-PAR project within a large health services institution. We also note how social innovation lab processes can support the emancipatory aims of participatory research. Implications for using Y-PAR in other areas are included.

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Young People’s Experiences in Youth-Led Participatory Action Research for Hiv/Aids Prevention

Cited by 3 publications

References 16 publications

Exploring children and young people’s experience of participating in citizen science–A qualitative evidence synthesis

Exploring children and young people’s experience of participating in citizen science–A qualitative evidence synthesis

Jinka Sawaal, Unka Netrutva: Fronting People and Communities in Participatory Research With Young People

The experience of youth-participatory action research in a social innovation lab: A methodological and organizational approach

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