Authors' Mini-bios:Chris Elsden (c.r.elsden@ncl.ac.uk, http://di.ncl.ac.uk) is an interaction design researcher with an interest in memory-related technologies and the experience-centred design of personal informatics; he is a Ph.D student at Open Lab in the School of Computer Science at Newcastle University. David S. Kirk (david.kirk@ncl.ac.uk) is a psychologist with an interest in the human-centred design of memory-related technologies; he is a Reader in Cultural Computing at Open Lab in the School of Computing Science at Newcastle University.Abigail C. Durrant (abigail.durrant@ncl.ac.uk, http://di.ncl.ac.uk) is an interaction design researcher with a longstanding interest in how digital technologies enable and constrain expressions of identity; she is a Leverhulme Fellow at Open Lab in the School of Computing Science at Newcastle University. AbstractThis paper questions how people will interact with a 'Quantified Past' -the growing historical record generated by the increasing use of sensor-based technologies and in particular, personal informatics tools. In a qualitative study, we interviewed 15 long-term users of different self-tracking tools about how they encountered, and made meaning from historical data they had collected. Our findings highlight that even if few people are self-tracking as a form of deliberate lifelogging, many of them generate data and records that become meaningful digital possessions. These records are revealing of many aspects of people's lives. Through considerable rhetorical data-work, people can appropriate such records to form highly personal accounts of their pasts. We use our findings to identify six characteristics of a quantified past and map an emerging design space for the longterm and retrospective use of personal informatics. Principally, we propose that design should seek to support people in making account of their data, and guard against the assumption that more, or 'better', data will be able to do this for them. To this end, we speculate on design opportunities and challenges for experiencing, curating and sharing historical personal data in new ways.
The term Do It Yourself Assistive Technology (DIY-AT) refers to the creation and adaptation of AT by nonprofessionals, including people with disabilities and their families, friends and caregivers. Previous research has argued that the development of technologies and services that enable people to make their own DIY-AT will lead to the rapid and low cost development of assistive devices that are tailored to meet the complex needs of individual people with disabilities. We present the results of a qualitative study that explored challenges related to the process of making DIY-AT for children with disabilities. A series of eleven semi-structured interviews with a broad range of stakeholders involved in the current use, provision and adaptation of AT for children with disabilities revealed a number of challenges relating to the prevalence and scope of ongoing DIY-AT practice, barriers to participation, and the challenges faced by makers and users of DIY-AT.
Speculative Enactments are a novel approach to speculative design research with participants. They invite the empirical analysis of participants acting amidst speculative but consequential circumstances. HCI as a broadly pragmatic, experience-centered, and participant-focused field is well placed to innovate methods that invite first-hand interaction and experience with speculative design projects. We discuss three case studies of this approach in practice, based on our own work: Runner Spotters, Metadating and a Quantified Wedding. In distinguishing Speculative Enactments we offer not just practical guidelines, but a set of conceptual resources for researchers and practitioners to critique the different contributions that speculative approaches can make to HCI discourse.
Resulting from treatment advances, the Human Immunodeficiency Virus (HIV) is now a long-term condition, and digital solutions are being developed to support people living with HIV in self-management. Sharing their health data with their peers may support self-management, but the trust, identity, privacy and security (TIPS) considerations of people living with HIV remain underexplored. Working with a peer researcher who is expert in the lived experience of HIV, we interviewed 26 people living with HIV in the United Kingdom (UK) to investigate how to design a peer data sharing platform. We also conducted rating activities with participants to capture their attitudes towards sharing personal data. Our mixed methods study showed that participants were highly sophisticated in their understanding of trust and in their requirements for robust privacy and security. They indicated willingness to share digital identity attributes, including gender, age, medical history, health and well-being data, but not details that could reveal their personal identity. Participants called for TIPS measures to foster and to sustain responsible data sharing within their community. These findings can inform the development of trustworthy and secure digital platforms that enable people living with HIV to share data with their peers and provide insights for researchers who wish to facilitate data sharing in other communities with stigmatised health conditions. CCS CONCEPTS • Human-centered computing~Human computer interaction (HCI) • Security and privacy~Social aspects of security and privacy
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