This study described the impact of adopting person-centred care approach for people with Alzheimer's disease on professional caregivers' burden. The participants were subjected to a 4-week structured training programme about person-centred care. The programme's effectiveness was proven by using the Global Behavior Scale. Then a qualitative descriptive phenomenological approach was used to explore the impact of applying this programme on professional caregivers' burden. Data were collected from a sample of 10 professional caregivers using semi-structured interviews. A total of three themes were identified: acceptance of disease-related behaviours of people with Alzheimer's, therapeutic understanding of people with Alzheimer's feelings (empathy) and enhanced caregivers' adaptation to people with Alzheimer's demands (resiliency). Findings suggested that adopting person-centred care approach for people with Alzheimer's disease reduces professional caregivers' burden.

Family carers increasingly take on the responsibility of self-management of dementia as the condition progresses. However, research on this topic is scarce. This scoping review aimed to identify the key characteristics related to self-management of dementia by carers including its components, theoretical/conceptual frameworks that underpinned these components and measurements. A scoping review was conducted in 8 databases and 16 publications met the inclusion criteria. Twenty-two components were identified and grouped into two categories: activities and carer characteristics and skills. The identified theoretical/conceptual frameworks were numerous and varied as were the measures. There was a little consistency of the key characteristics of self-management of dementia by carers. The findings assist carers and healthcare providers to understand the components involved in self-managing dementia which will guide the development and delivery of self-management support interventions for carers. Further research is required to validate these findings and to develop specialized conceptual frameworks and measures.

To develop and validate a scale, the Self-management of Dementia by Carers (SMDC). Mixed-methods were used. First, the domains of the SMDC Scale were identified through a systematic literature review and interviews with expert professionals and carers. Then the following psychometrics were performed: content and face validity, internal consistency, test-retest reliability, and construct validity. The final scale had 58-item grouped into 6 factors. The internal consistency and test-retest reliability coefficients were excellent. This scale can be used to determine carers’ ability to assist the person living with dementia to self-manage this condition in clinical practice and research.

Background Patients diagnosed with hematological malignancies and residing in low-middle-income countries undergo significant physical and psychological stressors. Despite this, only a mere 16% of them receive proper care during their terminal stages. Therefore, it is crucial to gain insight into the unique experiences of this patient population. Aim To gain a better understanding of the needs and lived experiences of adult patients with advanced hematological malignancy in their terminal stage from a phenomenological perspective. Methods To collect and analyze data, a qualitative interpretive design was employed, using a phenomenological approach. The study involved in-depth interviews with ten participants aged between 36 and 76 years, utilizing an unstructured approach. Results The study's analysis revealed two primary themes that emerged from the participants' experiences of reaching the terminal stage of illness: "Pain, Suffering, and Distress" and "Spiritual Coping." The first theme encompassed physical and emotional pain, suffering, and distress, while the second theme centered on the participants' spiritual coping mechanisms. These coping mechanisms included seeking comfort in religious practices, relying on spiritual support from family and friends, and finding solace in their beliefs and faith. Conclusion Patients with hematological malignancies in their terminal stages experience significant physical and psychosocial suffering. While they require support to cope with their daily struggles, their experiences often go unnoticed, leading to disappointment and a loss of dignity. It is critical for healthcare providers to acknowledge these patients' needs and provide more organized and effective care as they approach the end of life, ensuring they receive the necessary support to achieve a peaceful death. This approach can help maintain the patient's comfort and dignity, which is of utmost importance in the terminal stages of illness.

The double societal hit of dementia and infectious disease outbreaks like the COVID-19 pandemic have raised a convergence of concerns for the future of care settings for people living with dementia. It is estimated that 5.4 million Americans have some form of dementia and these numbers are expected to rise in the coming decades, leading to an unprecedented demand for memory care housing and services. In searching for innovative options to create more autonomy and better quality of life in dementia care settings, repurposing existing structures, in particular vacant urban malls, may be one option for the large sites needed for the European model of dementia villages. These settings may become sustainable Dementia Friendly City Centers, because with enclosed mall construction, the internal infrastructure is in place for lighting and HVAC, with varied spatial configuration of public spaces. This paper describes the community-based focus group research with medical providers who addressed designs for adaptive reuse of an existing closed mall case study site. Focus group outcomes included discussions on four central themes about the adaptive reuse including: applicability of the concept, spectrum of programs, economic feasibility and onsite medical care.