No abstract

No abstract

No abstract

Residents of three rural communities in southeastern Connecticut, adjacent to the Native American-owned Foxwoods Resort and Casino, have mixed reactions to the casino and their Native American neighbors. Three years of surveys are used to monitor changing attitudes, analyze and model current attitudes, and predict acceptance offuture development.

In order to assess some aspects of the quality of care for families seeking the cause of their child(ren)s intellectual disability, a postal questionnaire was sent to parents of children with fragile-X syndrome, who were members of the UK Fragile-X Society. Although the interval taken to get a diagnosis ('lagtime') has fallen over time, other aspects of care could still be improved. Most families feel that having a diagnosis is an advantage, but many still find the diagnostic process distressing and feel unsupported. Not all families are referred for genetic counselling, and even those who are do not always understand or retain the information given. Most families feel that having a diagnosis is a benefit rather than a disadvantage.