Caregivers of children with disabilities describe negative physical, emotional and functional health consequences of long-term, informal caregiving. They have important insights regarding those aspects of caregiving that have positive and negative influences on their health. Interventions that address these issues may have the potential to positively impact caregiver health.
Little is known about the influence of sleep quality, stress, and caregiver burden on quality of life in maternal caregivers of young children with bronchopulmonary dysplasia (BPD). In 61 maternal caregivers (mean age 29.59 years) of young children with BPD (mean age 13.93 months), caregivers reported sleeping a mean of 5.8 hours, and significant correlations were found between sleep quality and depressive symptoms and stress, as well as an inverse correlation with quality of life. Sleep quality was found to be the most significant predictor of quality of life in maternal caregivers.
dolescents diagnosed with cancer represent a group of patients with a unique cancer epidemiology, development profile, and research needs. The population's most common cancers include lymphoma, leukemia, central nervous system cancers, endocrine and germ cell tumors, and sarcomas-a spectrum of cancers different than that seen in adults or in younger children (Bleyer, Viny, & Barr, 2006). Adolescents face cancer and receive treatment at a time in life that is full of physical, social, and psychological growth that determines future careers, lifestyles, and relationships. These circumstances result in cancer treatment and symptom experiences for adolescents that are not likely to reflect those of younger children or adult patients. Age-specific research, therefore, is required to determine tailored disease and symptom-management strategies for these vulnerable adolescents with cancer. Cancer-related fatigue is one of the most frequent symptoms reported by adolescents and rated as one of the most distressing (
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