Background: Aphasia changes the links an individual has with his/her social milieu. However, information about these changes is sparse as most research on aphasia has been centred on understanding this language disorder and testing treatment methods. Moreover, information about the psycho-social consequences of severe aphasia is even rarer. Aims: To determine the consequences of severe aphasia as experienced by spouses of persons with aphasia.
Methods & Procedures:A qualitative phenomenological approach was adopted. Spouses of five persons with relatively longstanding severe aphasia were interviewed with a semistructured qualitative schedule. The analysis was guided by the data and by a model of the adaptation process. Outcomes & Results: Spouses' perceived sources of stress related to various changes in lifestyle habits more or less explicitly related to the aphasic person's communication impairment. These consequences were experienced in the realms of communication, interpersonal relationships, responsibilities, leisure activities, and finances. Spouses employed coping strategies. These strategies were directly based on the problems they encountered or on the control of the significance of these problems. Spouses experienced various indicators of adaptation such as fatigue, anxiety, discouragement, loss of privacy, social isolation and burden. These consequences, coping strategies, and indications of adaptation were functions of the contextual stimuli of these couples. Conclusions: These results serve to describe how spouses experience lifestyle changes associated to the aphasia in their partner. Speech-language therapy could contribute to minimise the impact of aphasia on both spouses and aphasic people by considering how spouses adapt to aphasia.
Resilience moderates the association between community belonging and social participation among community-dwelling older women and, especially, men. Interventions targeting social participation should consider the potential impact of resilience on improving community belonging. Future studies should investigate why resilience moderates associations between community belonging and social participation, and how to enhance resilience among older adults.
Introduction : les personnes ayant un traumatisme craniocérébral (TCC) demeurent généralement avec des séquelles physiques, sensorielles ou psychologiques qui perturbent leur capacité à réaliser leurs activités quotidiennes. Contexte : un projet d’accompagnement-citoyen personnalisé d’intégration communautaire (APIC) a été implanté pour pallier au manque de ressources et soutenir ces personnes dans la redéfinition de leurs projets de vie. Objectifs : cette étude vise à évaluer les effets de l’APIC sur le mieux-être et sur les capacités de personnes ayant un TCC à réaliser leurs activités de la vie quotidienne et de loisirs. Méthode : un devis mixte d’étude de cas multiples, utilisant une approche de recherche participative et collaborative a été privilégié. Des données qualitatives et quantitatives ont été recueillies lors d’entrevues semi-structurées auprès de neuf personnes ayant un TCC, à 6 mois et 12 mois du début de l’accompagnement. Résultats : l’étude démontre les retombées positives de l’APIC sur le développement de l’autonomie des participants et sur leur satisfaction quant à leur participation sociale. Discussion et conclusion : elle indique que l’accompagnement APIC est un espace sécurisant fondé sur la réciprocité entre l’accompagné/accompagnateur, mettant en action les capacités de résilience de la personne.
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