Epilepsy causes restrictions in the performance of various daily activities. The aiming of this study was to investigate whether these restrictions affect the perceived quality of life. The assessments Quality of Life in Epilepsy-31 (QOLIE-31) and Canadian Occupational Performance Measure (COPM) were applied in a sample that consisted of a single group of 34 subjects with at least two years of uncontrolled seizures. The results indicated that the most affected domains of QOLIE-31 were seizure worry, 29.77 (±21.72), and effects of drugs, 49.75 (±28.58), and for the COPM, the average of performance and satisfaction were respectively 3.10 (±3.07) and 4.45 (±3.29), and performance limitations most frequently cited were maintain employment (18), left home alone (15) and courses (15). The application of the Spearman correlation coefficient showed that the three main performance limitations posed by the COPM, especially regarding the level of satisfaction, influence the perception of quality of life. Thus, occupational performance proves to be an important area of intervention with subjects with epilepsy.
O artigo pretende descrever as percepções do(a)s trabalhadore(a)s quanto ao cotidiano institucional e suas possíveis correlações com os fatores que geram sofrimento mental e crises no público atendido em sete Centros de Socioeducação (Censes) do Paraná. Utilizou-se como instrumentos de coleta de dados grupos focais, entrevistas e observações participantes, sendo os dados interpretados pelos princípios da hermenêutica. Observou-se uma não padronização das estruturas dos Censes e a percepção dos trabalhadores indicou dinâmicas menos institucionalizadas em estruturas menores. A privação ocupacional pareceu sinalizar o aumento do sofrimento mental do(a)s adolescentes, contrariamente ao acesso a um repertório de atividades significativas, as quais pareceram ser promotoras de saúde mental. Conclui-se que a institucionalização pode gerar sofrimento mental tanto ao(a)s adolescentes quanto às equipes que trabalham nos Censes, sendo a estruturação do cotidiano um de seus determinantes.
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