El artículo indaga en los modos en que el personal sanitario en contextos institucionales de atención en el final de vida se apropia de los discursos sobre las “diferencias culturales” de las poblaciones que atienden para basar sus intervenciones, interpretando qué es lo que los pacientes y sus familias necesitan. Sostiene que la apelación a discursos en clave culturalista aparece cuando los pacientes pertenecen a minorías étnicas, atravesando la comunicación de la enfermedad; la gestión de la atención y el cuidado y la espiritualidad, la religiosidad y los sistemas de creencias. Se trata de un análisis secundario basado en datos propios recabados en investigaciones realizadas en Servicios de Cuidados Paliativos, Oncología y Hospices de Argentina. Este fundamento “culturalista” de las intervenciones es atravesado por estereotipos y prenociones sobre las identidades culturales de poblaciones que ya tienen una alta carga de estigmatización en la sociedad y reproduce actitudes paternalistas y condescendientes. Concluye que negar o ignorar otras cosmovisiones es tan nocivo como reificarlas.
This article has 3 goals: To describe the attitudes and experiences of staff on end-of-life care treatment of dying persons, to examine how the staff view their terminally ill patients, and to gather professionals' opinions on how their experiences impact their daily lives. It is a qualitative research inquiry based on a constructivist-grounded theory design. The study subjects were professionals who were part of palliative care services in Buenos Aires city during 2012. A purposive sample of 30 personnel answered an open-ended questionnaire assessing attitudes and perceptions concerning end-of-life. The results showed the following: (a) ''Good'' deaths were considered those in which physical symptoms were dealt with, where the patient was surrounded or on good terms with family members, and where they were at peace with themselves, any unfinished business, or God. ''Bad'' deaths were believed to be those where the patient was physically uncomfortable, were within a conspiracy-silence atmosphere, and died alone. (b) The factors in common that staff members identified regarding deaths were the need for spiritual comfort, peace, and acceptance and the need for attaining a deep connection with others. (c) The unexpected issues identified among end-of-life trajectories were the varying attitudes that patients had regarding death. (d) The personal life of the staff was affected by being in charge of end-of-life care decision making.
KEY WORDSend-of-life, ''good/bad'' death perceptions, palliative care staff, perspectives, personal experiences, qualitative research
METHODSThis study was a qualitative research inquiry based on an exploratory design. Constructivist-grounded theory 7 design guided the qualitative phase of a broader research project carried out in 2 settings (Argentina and Spain) during 2012. Grounded theory was chosen as a suitable methodology for this phase of the research because it sought to
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.