Diagnostic radiology reports are increasingly being made available to patients and their family members. However, these reports are not typically comprehensible to lay recipients, impeding effective communication about report findings. In this paper, we present three studies informing the design of a prototype to foster patient-clinician communication about radiology report content. First, analysis of questions posted in online health forums helped us identify patients' information needs. Findings from an elicitation study with seven radiologists provided necessary domain knowledge to guide prototype design. Finally, a clinical field study with 14 pediatric patients, their parents and clinicians, revealed positive responses of each stakeholder when using the prototype to interact with and discuss the patient's current CT or MRI report and allowed us to distill three use cases: co-located communication, preparing for the consultation, and reviewing radiology data. We draw on our findings to discuss design considerations for supporting each of these use cases.
Increases in data complexity in personal informatics systems require new ways of contextualizing personal data to facilitate meaningful reflection. An emerging approach for providing such context includes augmenting one's personal data with the data of others "like them" to help individuals make sense of their data. However, we do not yet understand how an individual's self-reflection process is affected when the data of others is made available. In this paper, we investigate how people reflect on three types of personal data when presented alongside a large set of aggregated data of multiple cohorts. We conducted personal and cohort data reviews using a subset of participants from a mobile-sensing study that collected physical activity, digital social activity, and perceived stress, from 47 students over three weeks. Participants preferred to use characteristics of the data (e.g., maxima, minima) and graphical presentation (e.g., appearance of trends) along with demographic identities (e.g., age, gender) when relating to cohorts. We further characterize how participants incorporated cohort data into their self-reflection process, and conclude with discussion of the implications for personal informatics systems that leverage the data of "people like me" to enable meaningful reflection.
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