The aim of this qualitative systematic review is to explicate the experiences of stigma among family members of persons living with schizophrenia in any setting where they receive care. More specifically, the review will: (i) describe the experiences of stigma among family members of persons living with schizophrenia, (ii) describe the factors that influence the experiences of stigma, and (iii) describe the strategies and approaches used to cope with the stigma.
The carers and PHNs found the assessment tool to be useful and comprehensive in its approach. However, it requires modification, with specific attention being paid to the validity and reliability of the tool.
Aim To develop an assessment tool for the collection of information on carers' needs and to pilot test same.
Background No formal assessment of the needs of carers is undertaken by Public Health Nurses (PHNs) in the West of Ireland.
Method An assessment tool which took the form of a questionnaire was designed based on an earlier needs analysis, a literature review and qualitative data obtained with carers at two focus groups. Sixty carers were involved in the pilot study of the tool.
Findings Carers found this model made them feel valued, created awareness about the effects of caring and provided them with information. They recommended its introduction.
Conclusion The carers and PHNs found the assessment tool to be useful and comprehensive in its approach. However, it requires modification, with specific attention being paid to the validity and reliability of the tool.
This study describes 18 informants' experiences with home care by multidisciplinary health care providers using participant observation as research methodology. Study findings support the salience of culture as the context for interpreting, valuing, and defining satisfaction with care. In contrast to hospital care, home care was perceived by informants as enhancing their ability to remain in their valued setting, supportive of their restorative and health maintenance needs. In particular, all informants viewed their home as the milieu that allows for continuity of their lifestyles, family relationships, and cultural values.
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