Background: Cerebral palsy (CP) is a multi-disorder which disturbs ability of child to move, sustain posture and balance. Quality of life is increasingly recognized as a major factor in determining a child's health and well-being. There are many ways to enhance the quality of life for children with (CP), such as empowering the caregivers. Aim: to evaluate the effect of empowerment program for caregivers on quality life of children with cerebral palsy. Design: A quasi-experimental research design (one group pre/posttest) was conducted at neurology out-patient clinic of Children Hospital at Ain shams University Hospital. Sample: A purposive sample consisted of 75 children and their caregivers at the previously mentioned setting. Tools: Four tools were used as children and their caregivers' demographic characteristics, activity of daily living, child quality of life inventory and family empowerment scale. Results: revealed that 74.7% of the studied children were partially dependent at total activities, while 50.7% of them were independent at post program, detected through p value <0.01. Also, revealed that there was slight significant difference related to physical, emotional and social function at pre and post program at p value <0.05. But, there was no significant difference between mean score at pre and post program related school function at p value >0.05. Conclusion: There was high significant difference between mean scores at pre and post empowerment program for caregivers of children with cerebral palsy at p value <0.01. Empowerment program for caregivers had positive effect on quality life of their children. Recommendation: Preparing continuous empowerment program for caregivers of children suffered from cerebral palsy.
Background: Chronic rheumatologic disease in children is juvenile rheumatoid arthritis, yet little is known about their health-related quality of life .Aim of the study was to describe Health Related Quality of Life in self-reports of children with juvenile rheumatoid arthritis. Subjects and Method: descriptive research design was used in this study. A convenience sampling technique was used for 100 children aged from8 to 18 years who had been attending to rheumatology unit and rheumatology outpatient clinic at Assiut University Children Hospital.Results: There was a statistically significant impaired in pain and hurt, daily activities, treatment, worry and communication among children with juvenile rheumatoid arthritis. Conclusion: children with juvenile rheumatoid arthritis have lower health-related quality of life.
Recommendation:The study recommended that health promotion program for children with juvenile rheumatoid arthritis, and their family members are needed. Nurses, physicians, parents and teachers must be informed of the risk for impaired health-related quality of life among juvenile rheumatoid arthritis children to promote interventions that must improve health outcomes.
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