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Background The central role of microbiota and the contribution of diet in immune-mediated inflammatory diseases (IMID) are increasingly examined. However, patients’ perspectives on nutrition and its impact on their disease has not received a lot of attention. We aimed to directly collect information from patients with IMID about their dietary behaviors and their perceptions of the influence of nutrition on their disease. Methods Adult patients with rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, Crohn’s disease, ulcerative colitis or psoriasis registered in an online patient community were invited to participate in the study and complete an online self-administered questionnaire. We assessed patients’ dietary knowledge and choices by collecting information on the diet regimens they were following or recommended and their perceptions of the diet and its consequences on their disease. Results Fifty patients per target disease were included with a mean age of 48.1 years (95%CI 46.7–49.6). Other sociodemographic and clinical characteristics varied across the diseases. Since diagnosis, 44% of the patients changed their eating habits, mainly patients with inflammatory bowel disease with 69% of these making the change on their own initiative. Patients who did not change their diet habits reported not having received nutritional advice from their healthcare professionals (HCP) in 69% of the cases. The perceived impact of nutrition on their symptoms was mixed (overall 74% of the patients reported positive consequences and 60% negative ones) and varied across the diseases. Patients with psoriasis only experienced positive consequences from changing their diet, such as reduction of stress and improved mental health, while patients with Crohn’s disease reported more negative effects such as increased fatigue and disturbed sleep. Patients with rheumatic diseases and ulcerative colitis reported weight loss and better physical fitness, but also increased fatigue. Conclusions Even if differences exist across diseases, the importance of nutrition and its potential positive role in symptom management is acknowledged by the majority of the patients. However, there is a need and a demand from patients to receive more dietary advice. Developing therapeutic education tools on nutrition for people with IMID and involving patients’ organizations would provide useful information and encourage communication between HCP and patients.

Background The central role of microbiota and the contribution of diet in immune-mediated inflammatory diseases (IMID) are increasingly examined. However, patients’ perspectives on nutrition and its impact on their disease has not received a lot of attention. We aimed to directly collect information from patients with IMID about their dietary behaviors and their perceptions of the influence of nutrition on their disease.Methods Adult patients with rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, Crohn’s disease, ulcerative colitis or psoriasis registered in an online patient community were invited to participate in the study and complete an online self-administered questionnaire. We assessed patients’ dietary knowledge and choices by collecting information on the diet regimens they were following or recommended and their perceptions of the diet and its consequences on their disease.Results Fifty patients per target disease were included with a mean age of 48.1 years (95%CI 46.7–49.6). Other sociodemographic and clinical characteristics varied across the diseases. Since diagnosis, 44% of the patients changed their eating habits, mainly patients with inflammatory bowel disease with 69% of these making the change on their own initiative. Patients who did not change their diet habits reported not having received nutritional advice from their healthcare professionals (HCP) in 69% of the cases. The perceived impact of nutrition on their symptoms was mixed (overall 74% of the patients reported positive consequences and 60% negative ones) and varied across the diseases. Patients with psoriasis only experienced positive consequences from changing their diet, such as reduction of stress and improved mental health, while patients with Crohn’s disease reported more negative effects such as increased fatigue and disturbed sleep. Patients with rheumatic diseases and ulcerative colitis reported weight loss and better physical fitness, but also increased fatigue.Conclusions Even if differences exist across diseases, the importance of nutrition and its potential positive role in symptom management is acknowledged by the majority of the patients. However, there is a need and a demand from patients to receive more dietary advice. Developing therapeutic education tools on nutrition for people with IMID and involving patients’ organizations would provide useful information and encourage communication between HCP and patients.

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■ La survie des patients atteints de cancer s'améliore grâce en particulier à des diagnostics plus préco-ces et à des traitements plus efficaces. En effet, parmi les 320 000 patients qui ont chaque année un diagnostic de cancer, plus de 165 000 seront vivants après cinq ans, et au moins 120 000 guériront de leur cancer 1 .La phase de traitement du cancer est de plus en plus personnalisée, et la complexité des parcours de soins en cancérologie nécessite de s'appuyer sur plus de coordination entre les acteurs de soins, notamment en impliquant le médecin traitant en tant que référent médical de proximité, prenant en compte la dimension sociale et préparant la période de l'après cancer. La mise en place de ce programme prendra le relais du programme personnalisé de soins (PPS) en fin de traitement. Révisable au fil du temps et adapté aux besoins du patient, il doit comprendre au minimum les éléments relatifs à la surveillance médicale alternée entre le médecin traitant et le médecin cancérologue, à la prévention du risque de second cancer, au suivi et à l'accompagnement social ainsi qu'à la réinsertion professionnelle qu'il est très important de mettre en place, précocement, avant même la fin du traitement. Il doit prendre également en compte le retentissement sur la qualité de vie et notamment le besoin en accompagnement psychologique des patients et des proches.La mise en place du PPAC doit être établie en concertation avec le médecin traitant. Ce dernier est en effet l'interlocuteur médical de référence pour les médecins cancérologues et pour les différents intervenants de proximité. Il a un rôle de plus en plus important dans le suivi des patients à long terme. En effet, le suivi carcinologique de la plupart des cancers peut être rapidement réalisé par le médecin traitant en lien avec l'équipe spécialisée, sous réserve de disposer de référentiels de suivi nationaux. De plus, il est ÉditorialEditorial ■Oncologie (2011) 13: 261-262