A parent's cancer affects the whole family (Faulkner & Davey, 2002). Parents diagnosed with cancer and their spouses have limited capacity due to the demands of the illness (Gazendam-Donofrio et al., 2008; Helseth & Ulfsaet, 2005), with many reporting feelings of guilt about failing to be a "good parent" and struggles in communicating with their children about the cancer (Semple & McCance, 2010; Zahlis & Lewis, 2010). The treatment course may take months or even years, throughout which children must contend with the parent's absence or decreased availability, changes in family roles and routines and questions surrounding mortality due to their parent's disease
Objectives
To describe the prevalence, patterns, and predictors of multimorbidity in adults with an acquired brain injury (ABI) on presentation to a community-based neurorehabilitation service.
Design
Retrospective cohort study using routinely collected admissions and clinical data.
Setting
Community-based neurorehabilitation.
Participants
Individuals (N=263) with non-traumatic brain injury (NTBI; n=187 [71.1%]) versus traumatic brain injury (TBI; n=76 [28.9%]).
Interventions
Not applicable.
Main Outcome Measures
Comorbidity was defined as the co-occurrence of at least one chronic condition in conjunction with a primary diagnosis of ABI. Multimorbidity was defined as the co-occurrence of 2 or more chronic conditions across 2 or more body systems, in conjunction with a primary diagnosis of ABI.
Results
Comorbidity was present in 72.2% of participants overall, whereas multimorbidity was present in 35.4% of the cohort. The prevalence of comorbidity (76% vs 63%;
P
=.036) and multimorbidity (40% vs 24%;
P
=.012) was higher in NTBI compared with participants with TBI. Participants with NTBI had a higher prevalence of physical health multimorbidities, including cardiovascular (44% vs 6%;
P
<.001) and endocrine (34% vs 10%;
P
=.002) disease, whereas participants with TBI had a higher prevalence of mental health conditions (79% vs 48%;
P
<.001). Depression (36.3%) and hypertension (25.8%) were the most common diagnoses. Increasing age was the only significant predictor of multimorbidity.
Conclusions
Most participants experienced multimorbidity. Effective management of multimorbidity should be included as part of individual rehabilitation for ABI and planning of resource allocation and service delivery. The results of this study can help guide the provision of treatment and services for individuals with ABI in community-based rehabilitation. Our study highlights access to mental health, cardiovascular, endocrine, and neurology services as essential components of rehabilitation for ABI.
Objective
To determine the differences in functional and cognitive rehabilitation gains made in community-based rehabilitation following a stroke based on stroke diagnosis (left or right hemisphere, hemorrhagic, or ischemic).
Design
A 12-month follow-up observational retrospective cohort study.
Setting
Staged community-based brain injury rehabilitation.
Participants
Clients (N=61) with hemorrhagic left brain stroke (n=10), hemorrhagic right brain stroke (n=8), ischemic left brain stroke (n=27), or ischemic right brain stroke (n=16) participating in rehabilitation for at least 12 months.
Intervention
Not applicable.
Main Outcome Measures
The Mayo-Portland Adaptability Inventory-4 (MPAI-4) was completed at admission and 12 months post admission to staged community-based brain injury rehabilitation by consensus of a multidisciplinary team.
Results
After 12 months in staged community-based brain injury rehabilitation, the study population made significant gains in Total (
P
<.001) and across Ability (
P
<.001) and Participation (
P
<.001) subscales of the MPAI-4. All diagnostic groups made significant gains in Participation T-scores, and no groups made significant gains in Adjustment. The ischemic left and right hemisphere stroke groups also made significant gains in Ability and Total T-scores from admission to 12 months. Clients with ischemic left hemisphere stroke had more severe limitations in motor speech (
P
<.05) than clients with right hemisphere stroke at admission and/or review and were also more impaired in verbal communication (
P
<.01) than the hemorrhagic right hemisphere group at admission.
Conclusions
There are some differences in outcomes on presentation to rehabilitation based on type of stroke; there are also differences in rehabilitation gains. Improvement in physical ability does not always translate to improvement in social participation and independence; those with right brain stroke need further assistance to translate physical gains into participatory outcomes.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.