Background In the context of public expenditure reduction and cuts, in 2012, the Spanish government approved the RDL 16/2012, which significantly affected the core values of the national health system. The measure particularly affected undocumented immigrants over 18 years of age, excluding them from accessing the full range of healthcare services in Spain, except for emergency care. In 2014, Red de Denuncia y Resistencia al RDL 16/2012 (REDER) was created as a public awareness and resistance network to defend universal access to healthcare and to stop its infringement. This study aims to analyse the social impact of REDER as a solidarity movement in response to the exclusion of undocumented immigrants from their universal right to health. Methods Qualitative research methodologies were used for the research. Data were collected between November 2017 and December 2017, using eight semi-structured interviews with key informants from the main REDER stakeholders. Additionally, key publications, documents, and presentations of researchers and experts in the field were analysed. For data analysis, a framework extracted from the literature on exclusionary and transformative dimensions of solidarity was used to identify barriers and drivers in REDER’s intervention. Results From its creation to the present, REDER has been able to achieve many of its objectives to defend the right to medical care of groups in irregular situations, contributing to the identification of 4,755 cases of discrimination in healthcare access and helping solve over 90% of these cases by delivering either healthcare assistance or administrative support. REDER has also played an important role in: stimulating social activation and empowering citizens to claim their fundamental rights, organising actions against restrictions on accessibility and creating synergies to restore universal healthcare coverage. Conclusions REDER has been shown to be effective in leading the defence of universal healthcare rights, and some achievements in the years following 2012 could be directly attributed to the work done by the network, such as the elimination of legal requirements to obtain health cards or the reduction of the minimum time required to access healthcare. Despite context particularities, the initiatives and main actions of this network may be implemented in other settings that are facing similar limitations to healthcare access, in order to address injustices and promote solidarity. Electronic supplementary material The online version of this article (10.1186/s12939-019-0971-9) contains supplementary material, which is available to authorized users.
The aim of this paper is to collect evidence-based experience on a co-creation multi-stakeholder participatory process in a non-formal academic environment. We use the Sustainable Development Goals (SDGs), the “6i model,” and a participatory approach as background methodologies. Within the long-lasting process of collaboration with Eurochild (Eurochild advocates for children’s rights and well-being to be at the heart of policymaking. A network of almost 200 organizations internationally recognized for its work to promote children’s rights and well-being. It influences policies, builds internal capacities, and facilitates mutual learning and exchanges of practice and research), the event started with an open session followed by a World Café dynamic with 50 participants from different age groups (13–81), cultures (Spain, United Kingdom, Finland), professions, academic fields, and socioeconomic backgrounds. Several types of data were collected: participant observation during four months (20 h), informal communication with participants, and three in-depth interviews. Based on overall analysis, the application of both the 6i model and the child participation approach had an impact on three different levels: (1) in the functioning of the core group; (2) in the experience of the participants in the event; and (3) in the final outcome of the whole process.
Introduction: In the face of a growing ageing population and rising care needs, compassionate communities seek to visualize the community as an equal partner in the complex task of providing quality social and health care at the end of life. Description: Getxo Zurekin is a social innovation example for the creation of a compassionate community in Getxo, one of the most populated cities in the province of Biscay, with 25.46% of its population aged over 65. Mixed methodologies have been applied, active listening and co-creation of actions and strategies towards improving care and quality of life for people and families facing advanced disease and end of life situations, with more than 80 people interviewed to conform the basis for a collective sense making. The initiative has reached more than 1,000 people in Getxo. Discussion: Following a systemic approach, horizontal relationships and cross-sectoral collaborations have allowed engaging the active involvement of local agents in the collective sense making and co- creation process. Conclusion: Getxo Zurekin represents an example of a participatory action research model, which has shown to be effective to meet initial targets towards creation of a compassionate community.
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