The impact of caring for a child with autism on caregivers' health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills.
During emerging adulthood, lesbian and gay (LG) adults must develop an identity within the social context of heterosexist discrimination. Our specific aims were to examine differences by sexual orientation in depressive symptomatology and self-esteem and explore the role of personal resources in explaining these aspects of psychological well-being. Data were analyzed on 306 participants in emerging adulthood who completed an online survey.LG individuals experienced higher depressive symptomatology and lower self-esteem than heterosexuals, and variations in well-being were explained by personal mastery and social support. The instability which characterizes emerging adulthood is likely compounded by the developmental challenges posed by heterosexism. The formation of social relationships, coupled with personal mastery, appear to serve as protective resources during emerging adulthood.
Among the major costs associated with conducting survey research are the time and money spent recruiting a large and racially representative sample. Contrasted here are the costs of different recruitment strategies (agencies, support groups, snowballs, media, mass mailings) in terms of project time, supplies (e.g., postage, support materials), and staff time as they bear on the costs of recruiting 841 older mothers of offspring with lifelong disabilities. Results indicate that the costs of recruitment vary by method and race. Whereas agencies, support groups, and snowball recruitment were low-to moderate-cost strategies, they were less effective for recruiting African Americans than were media and demographic sampling unit strategies. These analyses suggest that with appropriate planning, funding, and implementation, nonprobability sampling methods can be used successfully to recruit a large and diverse sample. Suggestions for improving the implementation of future recruitment campaigns are also offered.
This study examines relationships between patient reported outcomes (PROs) and clinical outcomes in Type 2 diabetes mellitus (T2DM). Patients at the outpatient clinics of a university hospital completed measures of generic health status (SF-12), diabetes-specific quality of life (Audit of Diabetes Dependent Quality of Life - ADDQoL), and depressive symptoms (Center for Epidemiologic Studies Depression - CES-D). Patient reported data were merged with a retrospective collection of clinical and utilization data, including HbA1C, from electronic medical records. A Charlson comorbidity score, diabetes complications score, BMI, and total number of ER and hospital visits were calculated. Usable response rate was 44.3% (n = 385). Patients were dichotomized into glycemic control levels based on the ADA recommended A1C level < 7.0, vs. >or= 7.0. The ADDQoL, PCS-12, and MCS-12 scores were separately examined as dependent variables using hierarchical regression models, with glycemic control as the primary explanatory variable, and controlling for demographics and clinical variables including comorbidities and complications. Glycemic control was not a significant predictor in any regression model. Obesity was a significant predictor leading to poorer PCS-12 and MCS-12 scores, while depressive symptoms significantly resulted in lower PCS-12, MCS-12 and ADDQoL scores. These and other factors related to self-management behaviors may contribute to a greater understanding of how to intervene with patients with T2DM. The use of such PROs alongside biomedical measures such as A1C is recommended.
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