The relationship between spirituality/religion and health is receiving increasing academic interest, but few studies have explored the experience of Australians. This paper presents data from an exploratory survey of patients and families in a public teaching hospital in Sydney. The findings show that the majority of hospital service users:
Aim
To examine medicine management in older people from non‐English speaking backgrounds (NESB) after discharge from hospital.
Method
A literature review, followed by focus group discussions with hospital clinicians. Patients 70 years and over from Greek, Chinese, Russian and English speaking backgrounds were interviewed. Case histories were developed based on the interviews and a review of the patients' medical records. Data were clustered and themes extracted. Educational resources were produced for clinicians comprising an action guide and a composite audiovisual case study. These resources were used in further focus group discussions with hospital clinicians to determine current practice for identifying and managing medication management risks for patients from NESB.
Results
Major themes identified included: patients' lack of knowledge about medications and medication changes; interpreter services not used routinely; and inadequate communication between health professionals. There was little evidence of systematic, standardised processes for identifying people at risk of medicine mismanagement or for the implementation of actions to minimise risks.
Conclusion
There is a need for effective communication about medications, particularly when patients are transferred from hospital to the community. For people from NESB, this also includes the use of interpreters and translated educational material. A patient journey map and medicine management action guide provides a framework for clinicians to optimise safe medicine management and continuity of care.
Background, aims and objectives: Compassionate Communities is emerging as an international strategy for implementing the public health palliative care approach to end-of-life. It is a community-centred approach which places people and their naturally occurring networks at the centre of care, death and grief, thus extending the concept of person-centred care to network-centred care. In this article describe the first steps in the development of a Compassionate Community in the South West of Western Australia (2018). The aim of this initiative was to create opportunities for conversations around death, dying and loss; identify naturally occurring community connectors and hubs within the community and to foster a Compassionate Communities model of end-of-life care for practical and social support.Methods: To facilitate a ‘positive’ conversation, a format of a Mini Death Festival was undertaken to engage the broader community and to launch the South West Compassionate Communities Network. Attendees were invited to participate in a brief on-line survey describing their experiences with the event.Results: Over 100 people attended and 43 people registered on the day to be part of the Network. Response rate for the on-line survey was 63%. Feedback was overwhelmingly positive. The qualitative analysis generated 6 themes describing the benefits that participants reported, from cherishing the feeling of being connected, to building relationships through conversations, to learning and creative engagement through to feeling in a position to take action.Conclusions: The death festival enabled the South West Compassionate Communities Network to identify and develop an extended network of people who see themselves as part of a shared community of interest and who have an understanding of each other’s skills and talents. These individuals are vital assets in furthering the Compassionate Communities work and potential resources the Network can actively partner with to co-design the way forward. This is one example of an emergent evidence-base for how Compassionate Communities can be operationalised in the Australian context.
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