The focus on cancer rehabilitation has increased, but breast cancer patients still report unmet rehabilitation needs. Since many women today will live long beyond their diagnosis, there are multiple challenges for the healthcare system in supporting these women in their new life situation. A more individualized approach is seen as necessary to optimize the rehabilitation for survivors. Pathographies, i.e., autobiographical or biographical accounts of experiences of illness, expose us to personal accounts of the journey through illness and treatment, offering us details, emotions, phrasings, and imagery from an individual perspective. In this literary study, we have analyzed two contemporary Swedish-speaking pathographies about breast cancer. In our analysis, we have presented perspectives on survivorship, and the authors’ ways of conveying their breast cancer experiences through narrative. The pathographies envision the prominent impact the breast cancer has on the authors’ lives. Narratives of survivorship have the potential to complement the more general medical knowledge with their nuanced and multifaceted stories of breast cancer. Learning from this type of material may improve the understanding of the complexity of breast cancer survivorship issues. This may be a way to become more attuned to identifying individual needs and preferences of breast cancer patients.
Illness narratives can be said to reclaim the voice of the patient, and while they draw much of their strength from a position of experience and loss, they are also highly mediated and constructed narratives. This article studies, how these textual self-representations are formed in relation to intertexts, and how the authors explicitly use other literary texts and enter into a dialogue with them. Two pathographies are studied, Anders Paulrud’s Fjärilen i min hjärna (“The Butterfly in my Brain”, 2008) and Agneta Klingspor’s Stängt pga hälsosjäl (“Closed due to health reasons”, 2010, and their specific strategies in incorporating other literary texts: Paulrud through assemblage and community, and Klingspor through resistance and critique, especially of narratives the author feels she is supposed to appreciate. In the end, both authors seem to share a view about literature as potentially helpful and meaningful in conveying experiences and even point to a healing potential in narratives and literature.
”This body that has forsaken me.” Breast cancer, bodies, and recovery in Kristina Sandberg’s "En ensam plats" and Yvonne Hirdman’s "Behandlingen" This article studies autobiographical accounts of breast cancer, so called pathographies, analysing how the body and the illness are portrayed. The article has a special focus on the experiences of the lived body, relating it to the psychological concept resilience as well as to the sense of estrangement of the body in illness and the socially situated body. The focus of the study is two autobiographical Swedish accounts of breast cancer: Kristina Sandbergs’ En ensam plats (‘A lonely place’, 2021) and Yvonne Hirdman’s Behandlingen. 205 dagar i kräftrike (‘The treatment. 205 days in the kingdom of cancer’, 2019). The article is located in the field of medical humanities and the authors aim to bring out aspects relevant to both the literary understanding of pathographies and the medical understanding of individual experiences of illness.
This article deepens the understanding of characteristic features of Shared Reading (SR) that can shed light on health benefits of this literary practice suggested by previous research. We provide a detailed analysis of language, interaction, reading strategies and collaborative meaning-making in an online SR group in which participants read and discussed a modernist poem. We triangulate our analysis with results from a focus group with the participants. Our study is informed by psychological theories about joint attention and its effects on social cohesion, mentalisation and perspective-taking. The analysis shows how the SR format provides a space in which ingroupness, intersubjectivity, and perspective-taking are created and realised in language use and interaction. Furthermore, our study suggests that many characteristic features of SR identified in earlier research can still be observed in an online SR group. The study lays the ground for more conclusive research of the benefits of this reading practice.
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