Prenatal blood tests are routinely offered to pregnant women in the UK. Male partners are tested only where a combined positive male and female test could detect fetal abnormality such as sickle cell anaemia. Little is known about the gendered nature of screening and the impact it has on lay feelings of genetic responsibility. For example, do women take exclusive 'maternal responsibility' for the fetus? How is this responsibility challenged when men are also screened? Drawing on empirical research with pregnant women and their male partners in a northern city in the UK, this paper aims to explore the gendered nature of genetic responsibility in prenatal blood screening. The paper will argue that women and men feel a sense of genetic responsibility for the fetus throughout screening. However, while women's sense of responsibility is directly 'embodied' and is heightened by the detection of 'faulty genes', men's manifests itself indirectly through shared responsibility with their pregnant partners and directly through their own genetic connections to the fetus. The paper concludes that the gendered nature of genetic responsibility is complex and contradictory, producing a set of gender roles that both challenges and reinforces a traditional gender division of labour.
This piece has been written in response to a recent article published in the Times Higher Education Supplement (THES) which exposed the red tape restricting health research in the UK's National Health Service (NHS). Whilst the THES article was critical of NHS ethical review and research governance, it still views a streamlined version of the process as necessary for the protection of researchers and respondents. Drawing on the recent experience of applying for ethical approval and research governance for a qualitative study on gender and genetics, this paper examines the review process and the restrictive paperwork and procedures that surround it, focusing in particular on the impact this has on social science research. The argument will be put forward that while all research, whether clinical or social, is hampered by the bureaucracy surrounding the review process, social research is further alienated by it. This is because the paperwork and processes involved are set up to evaluate clinical, not social, research. Furthermore, the process is caught up in a culture of fear that breeds mistrust towards ‘outsiders’ wishing to conduct research in the NHS. The revision of NHS ethical review has to go further than mere bureaucratic streamlining - it needs to be made more relevant and accessible to health researchers working across a range of disciplines.
Men's involvement in pregnancy has become an increasing area of interest in research on gender and reproduction. However, little attention has been given to men's roles when their partners are undergoing prenatal screening. Drawing on the findings of qualitative research with pregnant women and their male partners in a northern city in the UK, this paper aims to explore the increasing significance of men's roles in prenatal blood screening. Findings reveal that men occupy a range of important roles in screening both as supporters of their pregnant partners and as potential fathers. They also revealed however that men's participation is often inhibited by existing institutional and organisational factors including the attitudes of health professionals and workplace norms, both of which continue to be influenced by traditional gender role ideology. The paper concludes by arguing that pregnant women and their male partners therefore find themselves caught in a gender paradox whereby the desire for greater equality in pregnancy and screening has yet to be fully realised in practice.
Prenatal screening occupies a prominent role within sociological debates on medical uncertainty. A particular issue concerns the limitations of routine screening which tends to be based on risk prediction. Computer assisted visual technologies such as Magnetic Resonance Imaging (MRI) are now starting to be applied to the prenatal realm to assist in the diagnosis of a range of fetal and maternal disorders (from problems with the fetal brain to the placenta). MRI is often perceived in popular and medical discourse as a technology of certainty and truth. However, little is known about the use of MRI as a tool to confirm or refute the diagnosis of a range of disorders in pregnancy. Drawing on qualitative research with pregnant women attending a fetal medicine clinic in the North of England this paper examines the potential role that MRI can play in mediating pregnancy uncertainty. The paper will argue that MRI can create and manage women's feelings of uncertainty during pregnancy. However, while MRI may not always provide women with unequivocal answers, the detailed information provided by MR images combined with the interpretation and communication skills of the radiologist in many ways enables women to navigate the issue. Our analysis of empirical data therefore highlights the value of this novel technological application for women and their partners. It also seeks to stress the merit of taking a productive approach to the study of diagnostic uncertainty, an approach which recognises the concepts dual nature.
Much research into community, racism and racialization has been conducted in metropolitan urban settings. It is only recently that race in rural areas has received some attention. A key theme of existing research on race in rural areas has focused on the issue of racial violence. Drawing on interviews with a variety of ethnic minority groups in East Kent the article will focus on broader issues of race and ethnicity in a semi-rural area. The study explores the meaning of race, ethnicity and belonging in the partially rural setting of East Kent, UK. The article will raise issues around the intersection of the regional and global, the problematic notion of "community", and the fluidity of racialization in a setting in which many ethnic minorities were transitory and mobile. We conclude by highlighting the ways in which community, racism and racialization are embedded in differentiated discourses and processes.
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