This article attempts to provide an overview of issues related to children’s participation in decisions relating to health care. It sets the discussion in the context of current debate about children’s participation in health care decisions and explores the extent to which children want to participate in the decision. This article concludes that children mostly occupy a minimal role in communication and decisions regarding their care. The patterns of participation of children in communication and decisions are different and fluctuate between the children and within the same child throughout their hospitalisation, depending on the participating child, their preferences, and requirements at a particular time.
Objective: Framework analysis is a pragmatic approach for real-world investigations and has been commonly used in health care research. Although the theoretical part of framework analysis has been well documented, there is limited literature describing its practical use. The objective of this paper is to demonstrate systematic and explicit guidance in using framework analysis by giving an example of a study exploring women's experience of postnatal depression.
Introduction: Despite a growing recognition internationally that children have a right to participate in matters that affect their lives, they are not always involved in decision-making processes concerning their health care. There is a lack of information on how parents influence children’s participation in this decision making. This study explored the roles parents assume in processes regarding their children’s participation in communication exchanges and decision making in a paediatric oncology unit in Malaysia. Methods: This study adopted a focused ethnography design within a constructivist research paradigm. Participant observations and semi-structured interviews were conducted with 21 parents, 21 children and 19 nurses in a paediatric oncology unit in Malaysia. All observation fieldnotes and interview recordings were transcribed verbatim. A focused ethnographic data analysis technique was performed to analyse the data. Results: Three themes emerged regarding parents’ roles in the communication and decision-making processes involving their children: i) facilitators of communication; ii) communication brokers and iii) communication buffers. Conclusion: Parents controlled decision-making processes concerning their children, while children preferred and welcomed parents as consultants in the decision-making processes regarding their health care.
Introduction: High-quality care renders patients to be fully informed and involved in the decision-making process. A literature review also reveals that the involvement of patients in healthcare has been associated with improved clinical outcomes. However, it rarely happens as several studies demonstrated that patient involvement in decision-making is lacking worldwide. Hence, health professionals, especially nurses, play an important role in patient involvement in decision-making as they are mostly engaged with patients during the care plan. This study aimed to assess the nurses’ perceptions and their role on patient involvement in nursing care decision-making. Method: A cross-sectional descriptive study was conducted at one of the university hospitals in Malaysia. About 105 nurses from 3 major departments (internal medicine, general surgery, and orthopaedic) were involved in this study. The data were analysed using IBM SPSS Statistics version 25. Results: The result showed that most of the nurses agree their patient involvement in decision-making relates to their encouragement to participate as well as having opportunity and enough information to participate. However, many of the nurses believe that they have to decide for their patients. Besides, a significant association between nurses’ years of service and their perception of patient’s involvement in decision-making (p = 0.01) was noted. Similarly, there is a significant association between the nurses’ department and their preferred role with p-value of 0.001 (p < 0.05). Conclusion: This study indicates the need to further improve nurses’ awareness of the importance and benefits of patient involvement in decisions related to their nursing care.
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