Improved treatments for cystic fibrosis allow more patients to become parents. This article presents a systematic review of literature on cystic fibrosis patients’ experience of parenthood. Five databases (Cairn, Cochrane Library, PsycINFO, PubMed and ScienceDirect) produced 2335 documents that were screened. In total, 13 documents were retained and assessed with validated criteria. Five themes related to cystic fibrosis parenthood were discovered: population presentation, health and treatment adherence, adjustments, role of professionals and pressured temporality. Parenthood requires an important reorganisation of daily life in order to remain capable of childcare. Regardless of negative health impacts, cystic fibrosis parents have a positive outlook on parenthood.
Moral domain theory posits that moral knowledge is organized in separate domains related to moral and socio-conventional rules, with the latter being reliant on a statement made by authority. Domains may be contingent on different neuropsychological processing that may vary with age. Behavioral indices were measured in three age groups, to detect differences in the neuropsychological processing allegedly involved in the evaluation of rule transgressions in different domains. Acceptance of the transgressions was also investigated. Twenty-four children, 32 early adolescents, and 31 adolescents judged acceptability of rule transgressions when an authority figure allowed the transgression. Across age, moral-rule transgressions were less accepted and took significantly longer to be evaluated. In evaluating moral rule scenarios, children had the longest reaction times. Older adolescents took the least amount of time evaluating socio-conventional rule scenarios. Results suggest differences in the neuropsychological processing underlying decision making for moral and socio-conventional domains and that rule comprehension and distinction amongst domains increase by age.
Measurement burst designs, in which assessments of a set of constructs are made at two or more times in quick succession (e.g., within days), can be used as a novel method to improve the stability of basic measures typically used in longitudinal peer research. In this Element, we hypothesized that the stabilities for adolescent-reported peer acceptance, anxiety, and self-concept would be stronger when using the measurement burst approach versus the single time observation. Participants included youth between 10 and 13 years old who completed (a) sociometric assessments of acceptance, and measures of (b) social and test anxiety, and (c) self-concept across three times with two assessments made at each burst. Findings broadly showed that the stabilities were significantly stronger with the measurement burst when compared to the single time assessment, supporting our main hypothesis. We discuss the utility of the measurement burst in a broader context and considerations for researchers.
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