Teenagers with intellectual disabilities (ID) have significantly more health problems than the rest of the population and many encounter difficulties accessing the services they need during the transition from children's to adult services. A multidisciplinary, interagency study was carried out in one area of the UK with the intent to estimate the number of teenagers with ID between the ages of 16 and 19, their levels of mental and physical healthcare needs, their carers' perceptions of the transition process to adult services and unmet needs, and to make recommendations on how to address unmet needs. A mapping exercise was carried out to identify all teenagers aged 16-19 with ID known to local services; a postal questionnaire was sent to carers of all eligible teenagers; and then in-depth interviews carried out with a sample of carers. Most of the teenagers had significant levels of ID, multiple problems, and required constant supervision. Most of the teenagers were using a range of health, social care and education services, however, their carers still reported unmet needs; half had difficulty in accessing services. Different patterns of service use and unmet needs were found among the various ethnic groups identified in the sample. Only about a quarter of the carers interviewed were satisfied with the transition process. Authors found that carers were concerned about the lack of information concerning transition planning and adult services, and wanted earlier, more coordinated transition planning. The data confirmed the need for quality information and validated standardized tools that could be used for transition planning. Recommendations are that integrated referral systems for health and social care need to be developed, with links to clear care pathways, and that individual and systemic outcomes should be monitored.
The authors believe that a comprehensive risk management under a multiagency/multidisciplinary framework should be undertaken for all adults with ID and epilepsy in day-to-day clinical practice to reduce mortality in people with ID.
Accessible Summary The Inclusive Research Network (IRN) is a group of researchers who do projects that matter to people with intellectual disabilities in Ireland. This paper is about a project we did to learn what it is like for people with intellectual disabilities in Ireland to move from one house to another. We talked to 35 people who moved house. Some people chose where to move but others had no choice. Feeling safe made them happier in their new home. One third of the people we spoke to had no choice about where they live and who they live with. Having these choices is their right under the United Nations Convention on the Rights of Persons with Disabilities. People with intellectual disabilities need supporters who listen and respect them. Abstract BackgroundSupporting people with intellectual disabilities to live well in communities they choose is deinstitutionalisation's central aim and endorsed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD) (UN, 2006). This study focused on the experiences of people with intellectual disabilities in Ireland when moving home using an inclusive research approach. MethodThis inclusive research project employed a qualitative approach. Participants included 19 men and 16 women (total n = 35) with ages ranging from 22 to 77 years. Structured interviews attended to the experience of moving home and the supports accessed during and after the transition to community living. ResultsThematic analysis yielded four themes: “expressing choice” in the moving process; “feeling connected or isolated when moving”; “accessing supports during and after the move”; and finally, participants' reflections on “experiencing vulnerability and feeling safe” while resettling. ConclusionsThis is the first study about people with intellectual disabilities moving home to be collaboratively designed and completed by an inclusive research team. Although much is understood about the long‐term benefits of engaging in meaningful choices about housing and supports, concerns remain about the extent to which the will and preferences of people with intellectual disabilities in Ireland are respected when moving home.
Feminists are critical of family therapists in the treatment of incest because of their exclusive reliance on family systems theory, which blinds them to the societal impact and the effect of incest on individual members of the family. This article argues, however, that although the feminist critique of family therapy has raised important and irrefutable concerns regarding the political aspects of sexual abuse and family therapy, one of the most effective ways to address these concerns is through family therapy itself. A model for feminist-informed family therapy, which integrates the feminist, child sexual abuse, and family therapy literature, is explored. It is proposed that protection and empowerment of the incest victim is best done through a gender-sensitive family systems approach to treatment.Intrafamily child sexual abuse is an undeniable problem of growing interest to the mental health field. This is evidenced not only by the increasing numbers of reported cases, but also by the proliferation of books, articles, and training workshops for professionals that provide theoretical and practical expertise for working with families involved with incest. Although definitive empirical research on the causes and effects of incest has not been done, much clinical, retrospective, and to some degree, commonsensical evidence suggests that there arc grave enough consequences for most children to warrant serious concern and outside intervention (e.g. Finkelhor, 1984;Gelinas, 1983;Henderson, 1983).A variety of causal explanations for the development of incest and treatment programs for incest victims and families has emerged in this milieu Each author contributed equally to this article.
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