Much has been written about the stigmatisation and discrimination ascribed to people with dementia in society and in research. This marginalisation has led to a silencing of their voices and their experiences both on a national and international scale, and an often limited understanding about how people with dementia experience daily life. In this study, a participatory research project was conducted in collaboration with people with early-stage dementia who attended an adult school in Denmark. The study explored how to work collaboratively with people with dementia to develop their own research projects. Based on the findings, a qualitative participatory research model has been designed to support the active engagement of people with early-stage dementia in research. The project involved 12 people with early-stage dementia, who were divided into two groups ( n = 6 in each group) and then trained in research skills. Each group was then supported to design, develop and undertake a group research project. This was one continuous process, and constantly took account of the individual competencies of each group member. Based upon the knowledge gained from the training in research skills and the participatory research project The Balanced Participation Model was developed. The model illustrates five phases in a participatory research process focusing on the considerations needed for participant recruitment, planning, training in research skills, the participatory research project, and the evaluation and dissemination of results. The core of the model highlights the importance of the researcher role in facilitating the collaboration.

No abstract

Word count: 8,697"With us, we, like, physically can't": Transport, Mobility and the Leisure Experiences of Teenage Wheelchair Users. AbstractThis paper reflects upon the experiences of 69 British teenage wheelchair users in their attempts to access leisure environments. Heiser's (1995) notion of transport disability is developed, and the concepts of transport anxiety and mobility dependency are explored. The challenges that young people in general experience when attempting to access public and private forms of transport (namely buses, trains, taxis and private cars) are discussed, and the additional 'layers' of disadvantage experienced by teenage wheelchair users explored. The ramifications of barriers to transport for young wheelchair users in particular are shown.

Delivery of the PEP intervention in general practice was very effective at raising the awareness of breast cancer among older women. Primary care settings are well placed to enhance the reach of this kind of intervention to at-risk women.

No abstract