Much has been written about the stigmatisation and discrimination ascribed to people with dementia in society and in research. This marginalisation has led to a silencing of their voices and their experiences both on a national and international scale, and an often limited understanding about how people with dementia experience daily life. In this study, a participatory research project was conducted in collaboration with people with early-stage dementia who attended an adult school in Denmark. The study explored how to work collaboratively with people with dementia to develop their own research projects. Based on the findings, a qualitative participatory research model has been designed to support the active engagement of people with early-stage dementia in research. The project involved 12 people with early-stage dementia, who were divided into two groups ( n = 6 in each group) and then trained in research skills. Each group was then supported to design, develop and undertake a group research project. This was one continuous process, and constantly took account of the individual competencies of each group member. Based upon the knowledge gained from the training in research skills and the participatory research project The Balanced Participation Model was developed. The model illustrates five phases in a participatory research process focusing on the considerations needed for participant recruitment, planning, training in research skills, the participatory research project, and the evaluation and dissemination of results. The core of the model highlights the importance of the researcher role in facilitating the collaboration.
Citizen participation is a recurrent and democratically important issue in the ongoing debate about climate change. However, different meanings are ascribed to citizen participation in different contexts, ranging from top-down involvement to bottom-up engagement, thus creating tension between conflicting ideals. Focusing on public engagement and its construal in different situational contexts, we explore how citizens are discursively included or excluded from participation, as various climate change discourses unfold in two forums where local needs and global concerns interact. Furthermore, we address some opportunities and barriers regarding citizen participation in climate change issues.
Climate change mitigation and the transition to environmentally sustainable forms of life have become central public issues, and a number of studies have investigated the role of the media in constructing and distributing representations of climate change and sustainability. Most of these studies have addressed the media at a national or international level. This article investigates the mediating of a local, municipal initiative, i.e. the so-called ‘Energy Town Frederikshavn’ project in northern Denmark, which has set the ambitious goal of complete transition to renewable energy consumption and CO2 neutrality within a few years. Using frame analysis, informed by discourse studies, the article analyzes how the project emerged and was established as a public phenomenon in the media coverage, including how it was made intelligible and which social actors were represented as having a say on the matter. The findings show several differences to national or international representations of climate change and sustainability, such as a prevalent profiling frame and an indication of a reversal of the so-called Giddens’ paradox.
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