University students with visual impairment in Israel and worldwide face multiple academic and social barriers and must develop techniques, strategies and skills to adjust to the university environment. The current article is based on a longitudinal qualitative study aimed at incorporating students’ voices and offers some insight into the ways students experience their academic journeys. The research method combined grounded theory with the emancipatory disability research paradigm, which draws explicitly from people with disabilities’ collective experience and thus directly challenges this group’s widespread social oppression. This combination allowed the researcher to focus on students’ initial experiences as subjectively perceived. Sixteen students all defined as legally blind, from four universities in Israel, were interviewed over a 2-year period of their studies. The findings present two complementary narratives the interviewees used while configuring their identities. The article will focus on findings that suggest that during their academic journeys, students needed to manage a process of integrating their identity both as disabled and as students, choosing when and where to perform each identity and determining what the implications of each choice were along with each one’s related costs and benefits. The study’s implications and recommendations can help professionals and support services improve inclusion and equality in higher education.
Narratological distress is the internal battle between two unwanted narratives: The elusive delegitimizing narrative of denial, which seeks to ignore the experience of pain; and the narrative that acknowledges the pain, but with the price of accepting oneself as "ill" or "disabled."
The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article presents an analysis of a focus group and an online survey conducted with parents. The analysis produced a model that maps parents’ dilemmas regarding diagnosis disclosure to their child. The dilemmas, found to be complex and interconnected, concern the invisible nature of autism, the word autism and stigma, time motif, child’s environment, the act of disclosure itself, and the child’s personal narrative.
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