Scottish Government and The UK Football Pools funded delivery of the programme through a grant to the Scottish Premier League Trust. The National Institute for Health Research Public Health Research Programme funded the assessment (09/3010/06).
ContextThe use of the Internet for peer-to-peer connection has been one of its most dramatic and transformational features. Yet this is a new field with no agreement on a theoretical and methodological basis. The scientific base underpinning this activity needs strengthening, especially given the explosion of web resources that feature experiences posted by patients themselves. This review informs a National Institute for Health Research (NIHR) (UK) research program on the impact of online patients’ accounts of their experiences with health and health care, which includes the development and validation of a new e-health impact questionnaire.MethodsWe drew on realist review methods to conduct a conceptual review of literature in the social and health sciences. We developed a matrix to summarize the results, which we then distilled from a wide and diverse reading of the literature. We continued reading until we reached data saturation and then further refined the results after testing them with expert colleagues and a public user panel.FindingsWe identified seven domains through which online patients’ experiences could affect health. Each has the potential for positive and negative impacts. Five of the identified domains (finding information, feeling supported, maintaining relationships with others, affecting behavior, and experiencing health services) are relatively well rehearsed, while two (learning to tell the story and visualizing disease) are less acknowledged but important features of online resources.ConclusionsThe value of first-person accounts, the appeal and memorability of stories, and the need to make contact with peers all strongly suggest that reading and hearing others’ accounts of their own experiences of health and illnesss will remain a key feature of e-health. The act of participating in the creation of health information (e.g., through blogging and contributing to social networking on health topics) also influences patients’ experiences and has implications for our understanding of their role in their own health care management and information.
Intra-European family migration has extended the realm in which families live and work in Europe. This paper joins a limited number of recent attempts to analyse family migration using a children-in-families approach (Bushin 2009). In contrast to existing studies on this theme, our focus is on children's migration decision-making, experiences of step-migration and experiences of separation from parents during processes of intra-European family migration. Little is known about children's views and experiences of step-migration and separation from their parent(s) during family migration. Such experiences have implications for the spatial and temporal construction of family and childhood in Europe, where transnational mobility is increasing. This paper discusses children's experiences of separation in two research contexts, Scotland and the Republic of Ireland, to illustrate common features of the phenomena. The paper analyses family relationships relevant to migration decisions and explains their effects on children's agency, as well as on family integrity itself.
Self-management policies, programmes and healthcare practitioners need to recognize the tensions that people experience as they negotiate symptoms, valued social roles, positive identities, and daily life. Addressing these issues may improve opportunities to support patients in particular contexts, and enhance self-management.
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