In the United States many women infected with the human immunodeficiency virus (HIV) are poor women of African American or Hispanic American descent. Women with HIV have experienced many forms of oppression and discrimination and have been blamed as the victims of HIV and labeled as drug users, prostitutes, and carriers of acquired immune deficiency syndrome (AIDS). They have been stigmatized for their gender, their sexuality, their minority status, and their poverty, as well as for their HIV-positive status. Stigma theory is used in this article to explore the sources of stigma associated with this vulnerable group of clients.
Trust and belief in county officials and the media were the best predictors of willingness to evacuate. Participants in this study would need assistance with transportation, preparation, and support for serious health problems in order to evacuate. Further study is needed with a larger, more representative sample.
Historical and contemporary conceptualizations of caregiving have not addressed the active role of care recipients within caregiver-care-recipient relationships. Using an interpretive synthesis method, the authors developed the concept of protective care-receiving from three qualitative studies of different groups of care receivers (older adults with chronic illnesses, persons with AIDS, and persons in treatment for active cancer). This paper describes the focus of care recipients' protective care-receiving efforts, the goals they hoped to achieve, and the strategies they used to assist themselves in attaining their goals. Examples of their efforts and strategies are illustrated with quotations from the data. These findings extend what is known about care recipients' selfcare activities. Moreover, the findings reveal a new dimension in the role of care recipients--protective care given by care recipients to their professional care providers, family and friend caregivers, and other care recipients. The concept of protective care-receiving advances our understanding of caregiving relationships and presents researchers with the opportunity to investigate the complex encounter between caregiver and care recipient. Recognizing and facilitating care recipients' protective care-receiving is an ethical imperative for a 'caring' profession such as nursing.
In North America and throughout the world the number of persons living with human immunodeficiency virus (HIV [PLWH]) continues to increase. Before the recent discoveries of effective antiviral treatments that have given hope to families of PLWH, acquired immune deficiency syndrome (AIDS) was looked upon as a disease that was a virtual death sentence to those who were infected. The symptoms and opportunistic infections associated with AIDS are varied and debilitating, and PLWH require intensive and prolonged care during their many illnesses and rigorous treatments. As medical breakthroughs have prolonged the lives of the infected persons, the complicated regimens of the treatments and the physical effects of both treatment and disease continue to require the support and caregiving of family members. As is so often the case with caregiving, the tasks of caring for the men, women, and children with AIDS have been taken on in many cases by the women in their lives: their mothers, sisters, aunts, and other family members. In this study I used the grounded theory method to generate a substantive theory of women's caregiving in the context of AIDS. The primary process for collection of data in this study was interviewing participants. In-depth interviews were conducted with 9 women who ranged in age from 28 to 65. Three of the women had AIDS and were also caregivers, 3 other caregiving women were sisters, and 3 were mothers of PLWH. Five of the informants were White and 4 were African American. The basic social psychological process (BSPP) that emerged from the analysis of the data was sustaining the relationship. In this study, role transition, managing behavior, reciprocal caring, balancing independence, and managing distance were categories of the BSPP, "sustaining the relationship" as women engaged in the intricate processes of caregiving. These were overlapping and interacting processes that women used to nurture and preserve not only the object of their care, the person with HIV, but also that person's relationships with her or his significant others, including the relationship with the caregiver. In this article, relationships between categories are illustrated with quotations from the data. Implications for future research and for clinical practice are discussed.
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