This study compares the actual experiences of patient representatives, with government legislation and policy on patient and public involvement (as outlined in the Health and Social Care Act 2001, and the Local Government and Public Involvement in Health Act 2007). The research was time-limited and small-scale and comprised a focus group, six formal and two informal interviews with cardiac patients who had completed the British Heart Foundation (BHF) Hearty Voices training. One of the most prominent findings of the study was that patients who had a varied role and were at a more strategic level in representation reported feeling most rewarded in their efforts.
As part of a 2-year research project, 79 interviews were undertaken with adult social care (ASC) registered managers (RMs) in England. The study aimed to identify the factors that influence the leadership practice and priorities of RMs in their role in ASC at two points, before and after a leadership development programme (LDP). A critical framework of Bourdieu is used to explore and analyse how the RM's disposition plays out as they lead in the ASC sector. A narrative inquiry methodology was applied. Results found that a lack of funding and increasing regulation has added emotional stress to the RM leadership role and their motivation to lead. In order to cope, addressing the localised leadership development needs of the RMs was central and emotional wellness key. There is the potential for the ASC home to become a social arena for conflict between differing agency power relationships. By experiencing their preferred LDP, the RMs had gained insights into their position as a leader in ASC and how, by their own actions, they could both influence and shape it.
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