Objectives: Inflammatory bowel diseases (IBDs) are chronic diseases which negatively affect the schooling of children. The aim is to analyze school absenteeism and its causes in children followed for IBD. Methods: A prospective multicenter study of IBD patients aged from 5 to 18 years old, from September 2016 to June 2017. Data on absenteeism and its causes were collected via a monthly questionnaire completed by patients or their family by mail. The results were compared with existing data supplied by the school authorities (497 students without IBD divided by class). Results: A total of 106 patients (62 boys), median age of 14 (5–18), were included. The global response rate was 83.1%. The patients with IBD were absent an average of 4.8% ± 5.5% of school days during the school year, against 3.2% ± 1.6% for non IBD group (P = 0.034). Digestive disorders accounted for 34% of the causes of absenteeism. Approximately 27% of the absences were due to scheduled events (hospitalizations, endoscopy, or consultations). By excluding the absences for scheduled care, the rate of school absenteeism of patients with IBD is significantly lower than that of non-IBD group. Conclusion: Children with IBD are more frequently absent from school than non-IBD group. The main cause of school absenteeism appears to be associated with the disease itself. The share of scheduled absenteeism is quite large. The organization and scheduling of the patients’ care path must be a priority to maximally limit the negative impact of their disease on the patients’ schooling.
Background: Chronic abdominal pain occurs frequently in pediatric patients with inflammatory bowel disease (IBD) in remission.
Although central venous catheter (CVC)-related thrombosis (CRT) is a severe complication of home parenteral nutrition (HPN), the amount and quality of data in the diagnosis and management of CRT remain low. We aimed to describe current practices regarding CVC management in French adult and pediatric HPN centers, with a focus on CVC obstruction and CRT. Current practices regarding CVC management in patients on HPN were collected by an online-based cross-sectional survey sent to expert physicians of French HPN centers. We compared these practices to published guidelines and searched for differences between pediatric and adult HPN centers’ practices. Finally, we examined the heterogeneity of practices in both pediatric and adult HPN centers. The survey was completed by 34 centers, including 21 pediatric and 13 adult centers. We found a considerable heterogeneity, especially in the responses of pediatric centers. On some points, the centers’ responses differed from the current guidelines. We also found significant differences between practices in adult and pediatric centers. We conclude that the management of CVC and CRT in patients on HPN is a serious and complex situation for which there is significant heterogeneity between HPN centers. These findings highlight the need for more well-designed clinical trials in this field.
But : Décrire les circonstances de diagnostic, l'évo-lution et la prise en charge de la polypose de Peutz-Jeghers chez l'enfant. Méthodes : Analyse rétrospective de 25 dossiers. Diagnostic devant la présence d'au moins un polype hamartomateux associé à deux des trois critères suivants : antécédent familial, lentiginose, polype du grêle et/ou mutation du gène STK11. Résultats : Diagnostic clinique 21 fois (âge médian : 8,2 ans), devant une invagination intestinale aiguë (IIA) révélatrice dans 13 cas (2,8 à 15,1 ans). L'analyse génétique était positive dans 16/18 cas. Au cours du suivi (médiane : 4,6 ans), 15 enfants ont présenté une IIA. Soixante endoscopies oesogastroduodénales et 51 coloscopies ont retrouvé des polypes dans 85 % et 80 % des cas avec polypectomie dans 62 et 70 %. Vingt et un examens par vidéocapsule ont retrouvé des polypes du grêle 18 fois. L'entéroscopie à double ballon (EDB) a permis une polypectomie sept fois sur sept. Dix-huit patients ont bénéficié de 29 interventions chirurgicales avec entéroscopie peropératoire (12) et résec-tion intestinale (18). Commentaires : Le risque d'IIA et de résection est élevé et précoce. La réalisation d'examens endoscopiques systé-matiques pourrait diminuer ce risque. Une étude prospective permettra seule de valider les âges recommandés pour débu-ter cette surveillance endoscopique. Pour citer cette revue : Acta Endosc. 41 (2011). Mots clés Polypose de Peutz-Jeghers · Enfant · Endoscopie · VidéocapsuleAbstract Aim: To describe the diagnostic circumstances, outcome and management of Peutz-Jeghers polyposis in children.Methods: Retrospective analysis of 25 cases. Diagnosis of at least one hamartomatous polyp associated with 2 of the 3 following criteria: family history, mucocutaneous pigmentation, small bowel polyps and/or STK11 gene mutation identification. Results: Diagnosis based upon clinical criteria 21 times, median age of 8.2 years,by revealing acute intestinal intussusception (II) in 13 cases (2.8 to 15.1 years). Genetic analysis was positive in 16/18 cases. During follow-up (median 4.6 years), 15 children had an II. Sixty upper gastrointestinal endoscopies and 51 colonoscopies revealed polyps in 85% and 80% of cases, with polypectomy in 62% and 70%. Twenty-one video-capsule endoscopies revealed bowel polyps 18 times. Seven children had double-balloon endoscopy with polypectomy. Eighteen patients underwent 29 surgeries with intra-operative enteroscopy 12 times and bowel resection 18 times. Comments: The risk of II and resection is high and early. Management by systematic endoscopic examination could reduce this risk. A prospective study will only validate the recommended age to start this endoscopy survey. To cite this journal: Acta Endosc. 41 (2011).
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