Objectives: to analyze school (re)inclusion of an adolescent cancer survivor before/after participatory health education with adolescents. Methods: qualitative and participatory research that included data from the medical record of an adolescent rhabdomyosarcoma survivor and Talking Map dynamics (to diagnose the demand for learning and assess changes). The body-knowledge dynamics were applied in the educational intervention. In a public school in Rio de Janeiro, the adolescent (reference case) and nine people (four teachers and five teenagers) generated empirical materials, which became the content analysis objects. Results: strangeness to changes in an adolescent cancer survivor’s body image, bullying, and acceptance were problematized in educational body-knowledge dynamics through relationships between changes and barriers to welcoming. The participatory educational process was essential in raising awareness by promoting re-inclusive actions. Conclusions: participatory-problematizing education contributed to constructing a new collective identity and improvement in school interaction among peers.
RESUMO Objetivos: analisar o itinerário percorrido por familiares cuidadores de crianças pré-escolares sobreviventes da leucemia e discutir as implicações para enfermagem da atenção primária. Métodos: empregou-se a entrevista narrativa orientada pelo mapa falante e corpo saber com familiares de crianças sobreviventes de leucemia, residentes no Rio de Janeiro (capital) e São Paulo (interior). Aplicou-se a análise de conversação aos dados. Resultados: cinco núcleos familiares (sete pessoas) de cinco crianças iniciaram seu itinerário no subsistema profissional dos serviços privados; quatro foram assistidas no setor privado desde o início do adoecimento; uma foi assistida em serviços público e privado. As condições de vida reduziram barreiras de acesso à saúde suplementar, facilitando a coordenação e a escuta de um profissional de referência. Considerações Finais: o itinerário foi marcado por escuta atenta de familiares cuidadores pelo profissional de referência, favorecendo o diagnóstico precoce, início do tratamento e resolutividade da leucemia com a cura da criança.
Objectives: to analyze the path taken by family caregivers of preschool children who survived leukemia and discuss the implications for primary healthcare nursing. Methods: the narrative interview guided by a talking map and body knowledge was used with family members of children who survived leukemia, living in Rio de Janeiro (capital) and São Paulo (countryside). Conversation analysis was applied to the data. Results: five family groups (seven people) of five children started their journey in the professional subsystem of private services; four were assisted in the private sector since the onset of the illness; one was assisted in public and private services. Living conditions reduced barriers to accessing supplementary health, facilitating coordination, and listening to a reference professional. Final Considerations: the itinerary was marked by attentive listening to family caregivers by reference professionals, favoring early diagnosis, initiation of treatment, and resolution of leukemia with the cure of children.
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