The implications of the individual quality of life (QoL) model of Schalock and Verdugo have made it the most cited QoL model in the field of disability. The QoL model is understood as a conceptual and applied framework for action that allows the materialization of the rights of persons with disabilities through the multidimensional assessment of these persons using QoL indicators, and the development of actions guided by these values and supported by evidence. The purpose of this work is to present the foundations of this model and offer a step-by-step guide to developing standardized QoL assessment instruments and providing evidence that supports their use to implement the model in practice. This paper explores relevant topics such as: (a) the need to identify critical population groups and contexts; (b) the identification of QoL indicators for said groups and contexts; (c) the development of items focused on the assessment of personal outcomes; (d) provision to the items of validity evidence based on content and pilot measure design and (e) validation process to gather evidence that supports the uses of the instrument. Last, a framework that allows using the evidence on personal outcomes as disaggregated and aggregated data at different levels of the social system is presented, thus highlighting the role of the model as a change agent regarding individuals, organizations and schools, and public policy.
El carcinoma hepatocelular es la sexta neoplasia más frecuente en el mundo y la tercera causa de muerte en pacientes oncológicos. La mortalidad en los pacientes con esta condición se debe fundamentalmente a la caquexia tumoral, la insuficiencia hepática y la rotura espontánea del tumor. En este reporte se describe el caso clínico de un paciente de 69 años que acudió al servicio de urgencias hospitalarias aquejado de dolor abdominal de inicio súbito localizado en el epigastrio y vómitos con tendencia a la hipotensión, el cual tuvo que ser intervenido de
Hepatocellular carcinoma is the sixth most common neoplasm in the world and the third cause of death in cancer patients. Mortality in patients with this condition is mainly due to cancer cachexia, liver failure, and spontaneous tumor rupture. This report describes the clinical case of a 69-year-old patient who attended the hospital emergency department complaining of sudden onset abdominal pain located in the epigastrium and vomiting with a tendency to hypotension. The patient had to undergo emergency surgery due to the rupture of a previously unknown hepatocellular carcinoma. In addition to the clinical description of the case, the study is accompanied by a discussion on the possibilities of therapeutic management of this type of patient based on the international literature on the subject.
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