A model of internalized stigma in parents of individuals with disabilities

The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children

“…Furthermore, the study found that parents of Black autistic children reported lower healthcare quality than those raising Black children with other developmental disabilities, which suggest that both race and diagnostic category impact quality. Similarly, a recent literature review of Black caregivers’ perceptions of autism services found parent–provider interactions to be challenging, with parents reporting various experiences of discrimination while seeking and accessing services for their children (Čolić et al, 2021). Taken together, the diagnosis and treatment processes are oftentimes longer and more burdensome for Black families, significantly widening the gaps in access to quality healthcare for autistic children (Magaña et al, 2012) and placing additional stress on those in the caregiving role (Gourdine et al, 2011; Williams et al, 2019).…”