A Stoma Quality of Life Scale

Baxter, Nancy N.; Novotny, Paul J.; Jacobson, Therese; Maidl, Laurie J.; Sloan, Jeff A.; Young‐Fadok, Tonia M.

doi:10.1007/s10350-005-0275-6

Cited by 88 publications

(72 citation statements)

References 22 publications

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“…Stoma creation entails substantial morbidity and an obvious decrease in quality of life, with major psychological repercussions [19]. Nugent et al [20] reported that up to 80% of patients with a stoma experience alterations in lifestyle, body image, and behavior as well as problems with sexual life in 46%.…”

Section: Discussionmentioning

confidence: 99%

Expandable metal stent placement for benign colorectal obstruction: outcomes for 23 cases

2007

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SEMS can effectively decompress high-grade, benign colonic obstruction, thereby allowing elective surgery. The use of SEMS can offer medium-term symptom relief for benign colorectal strictures, but this approach is associated with a high rate of delayed complications. Thus, if elective surgery is planned, data from this small study suggest that it should be performed within 7 days of stent placement.

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Section: Discussionmentioning

confidence: 99%

Expandable metal stent placement for benign colorectal obstruction: outcomes for 23 cases

2007

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“…We used the City of Hope Quality of Life for Ostomates (mCOH-QOL-Ostomy) [36] questionnaire rather than other ostomy-specific tools (e.g., Stoma Quality of Life Scale) [37,38] in part because it contains openended questions, allowing participants to respond to questions in their own words. One open-ended item asked patients to discuss the greatest challenge they have faced in living with an ostomy.…”

Section: Introductionmentioning

confidence: 99%

Coping and acceptance: The greatest challenge for veterans with intestinal stomas

Krouse

Grant

Rawl³

et al. 2009

Journal of Psychosomatic Research

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“…scale (SQOLS) [30], Short Questionnaire to assess Healthenhancing physical activity (SQUASH) [31], Hospital Anxiety and Depression Score (HADS) [32], multidimensional fatigue score (MFI-20) [33] and the Self-administered Comorbidity Questionnaire (SCQ) [34] Questionnaires are provided at enrollment (baseline) and 3, 6, 12, 18 and 24 months thereafter, followed by an annual questionnaire for the remainder of their participation or until death. The comprehensive selection of PROM questionnaires which are administered frequently at pre-defined time points enable the use of PROMs as consistent endpoints in research.…”

Section: Longitudinal Assessment Of Promsmentioning

confidence: 99%

Prospective Dutch colorectal cancer cohort: an infrastructure for long-term observational, prognostic, predictive and (randomized) intervention research

et al. 2016

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Background: Systematic evaluation and validation of new prognostic and predictive markers, technologies and interventions for colorectal cancer (CRC) is crucial for optimizing patients' outcomes. With only 5-15% of patients participating in clinical trials, generalizability of results is poor. Moreover, current trials often lack the capacity for post-hoc subgroup analyses. For this purpose, a large observational cohort study, serving as a multiple trial and biobanking facility, was set up by the Dutch Colorectal Cancer Group (DCCG). Methods/design: The Prospective Dutch ColoRectal Cancer cohort is a prospective multidisciplinary nationwide observational cohort study in the Netherlands (yearly CRC incidence of 15 500). All CRC patients (stage I-IV) are eligible for inclusion, and longitudinal clinical data are registered. Patients give separate consent for the collection of blood and tumor tissue, filling out questionnaires, and broad randomization for studies according to the innovative cohort multiple randomized controlled trial design (cmRCT), serving as an alternative study design for the classic RCT. Objectives of the study include: 1) systematically collected long-term clinical data, patient-reported outcomes and biomaterials from daily CRC practice; and 2) to facilitate future basic, translational and clinical research including interventional and cost-effectiveness studies for both national and international research groups with short inclusion periods, even for studies with stringent inclusion criteria. Results: Seven months after initiation 650 patients have been enrolled, eight centers participate, 15 centers await IRB approval and nine embedded cohort-or cmRCT-designed studies are currently recruiting patients. Conclusion: This cohort provides a unique multidisciplinary data, biobank, and patient-reported outcomes collection initiative, serving as an infrastructure for various kinds of research aiming to improve treatment outcomes in CRC patients. This comprehensive design may serve as an example for other tumor types.

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A Stoma Quality of Life Scale

Abstract: The Stoma Quality of Life Scale demonstrates reasonable psychometric properties for measuring quality of life in patients with stomas. Further studies are needed to refine the instrument.

Cited by 88 publications

References 22 publications

Expandable metal stent placement for benign colorectal obstruction: outcomes for 23 cases

Expandable metal stent placement for benign colorectal obstruction: outcomes for 23 cases

Coping and acceptance: The greatest challenge for veterans with intestinal stomas

Prospective Dutch colorectal cancer cohort: an infrastructure for long-term observational, prognostic, predictive and (randomized) intervention research

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