Acceptance and treatment effects of an internet‐delivered cognitive‐behavioral intervention for family caregivers of people with dementia: A randomized‐controlled trial

Meichsner, Franziska; Theurer, Christina; Wilz, Gabriele

doi:10.1002/jclp.22739

Cited by 38 publications

(84 citation statements)

References 78 publications

(114 reference statements)

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“…The intervention duration ranged from 4 weeks to 12 months. Eight studies were performed in the United States [ 25 , 26 , 31 , 38 , 41 , 42 , 44 , 46 ], 3 studies were performed in Netherlands [ 28 , 37 , 40 ], 2 studies were performed in France [ 29 , 43 ], and 1 study each was conducted in Canada [ 39 ], Germany [ 30 ], Spain [ 27 ], and the UK [ 45 ]. All of the included studies reported clear inclusion and exclusion criteria for their participants.…”

Section: Resultsmentioning

confidence: 99%

“…The nature of the treatment of control group participants differed from one study to another. The control groups in 10 studies [ 25 , 27 - 30 , 40 , 42 - 45 ] were exposed to the same conditions as the corresponding intervention groups, except for the implementation of internet-based support intervention in the latter. However, in some studies, the control group received e-bulletins [ 37 ], booklet [ 39 ], or book [ 26 ] while the intervention group received internet-based support intervention.…”

Section: Resultsmentioning

confidence: 99%

“…For example, some RCTs have indicated that the level of caregiver burden [ 25 , 26 ], depressive symptoms [ 25 , 27 ], or coping competence [ 25 , 28 ] was significantly ameliorated in the internet-based group compared with the control group. Conversely, some trials have shown that there were no significant differences detected in caregiver burden [ 29 , 30 ], depressive symptoms [ 29 , 31 ], or coping competence [ 26 , 30 ] between the internet-based and control groups.…”

Section: Introductionmentioning

confidence: 99%

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Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Leng¹,

Zhao²,

Xiao³

et al. 2020

J Med Internet Res

111

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Background Caring for people with dementia is perceived as one of the most stressful and difficult forms of caring. Family caregivers always experience high levels of psychological burden and physical strain, so effective and practical support is essential. Internet-based supportive interventions can provide convenient and efficient support and education to potentially reduce the physical and psychological burden associated with providing care. Objective This review aimed to (1) assess the efficacy of internet-based supportive interventions in ameliorating health outcomes for family caregivers of people with dementia, and (2) evaluate the potential effects of internet-based supportive intervention access by caregivers on their care recipients. Methods An electronic literature search of the PubMed, EMBASE, Web of Science, CINAHL, Cochrane Library, and PsycINFO databases was conducted up to January 2020. Two reviewers (ML and YZ) worked independently to identify randomized controlled trials (RCTs) that met the inclusion criteria and independently extracted data. The quality of the included RCTs was evaluated using the approach recommended by the Cochrane Handbook for Systematic Reviews of Interventions. Standardized mean differences (SMDs) with 95% CIs were applied to calculate the pooled effect sizes. Results In total, 17 RCTs met the eligibility criteria and were included in this systematic review. The meta-analysis showed that internet-based supportive interventions significantly ameliorated depressive symptoms (SMD=–0.21; 95% CI –0.31 to –0.10; P<.001), perceived stress (SMD=–0.40; 95% CI –0.55 to –0.24; P<.001), anxiety (SMD=–0.33; 95% CI –0.51 to –0.16; P<.001), and self-efficacy (SMD=0.19; 95% CI 0.05-0.33; P=.007) in dementia caregivers. No significant improvements were found in caregiver burden, coping competence, caregiver reactions to behavioral symptoms, or quality of life. Six studies assessed the unintended effects of internet-based supportive intervention access by caregivers on their care recipients. The results showed that internet-based supportive interventions had potential benefits on the quality of life and neuropsychiatric symptoms in care recipients. Conclusions Internet-based supportive interventions are generally effective at ameliorating depressive symptoms, perceived stress, anxiety, and self-efficacy in dementia caregivers and have potential benefits on care recipients. Future studies are encouraged to adopt personalized internet-based supportive interventions to improve the health of family caregivers and their care recipients. Trial Registration PROSPERO CRD42020162434; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=162434

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Leng¹,

Zhao²,

Xiao³

et al. 2020

J Med Internet Res

111

View full text Add to dashboard Cite

show abstract

“…Finally, the number of studies using identical instruments and follow-up measurement points in similar target groups is limited (Pendergrass, Becker, Hautzinger, & Pfeiffer, 2015;Smith et al, 2007). An example of another intervention for carers of people with dementia that effectively increased wellbeing over the intervention period but treatment effects were not maintained after six months is the internet-delivered cognitive-behavioral intervention called Tele.TAnDem (Meichsner, Theurer, & Wilz, 2019).…”

Section: Discussionmentioning

confidence: 99%

The necessity for sustainable intervention effects: lessons-learned from an experience sampling intervention for spousal carers of people with dementia

Bartels

Knippenberg

Köhler

et al. 2019

Aging & Mental Health

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Objectives: Caring for a person with dementia can be challenging over the years. To support family carers throughout their entire caregiving career, interventions with a sustained effectivity are needed. A novel 6-week mobile health (mHealth) intervention using the experience sampling method (ESM) showed positive effects on carers' well-being over a period of 2 months after the intervention. In this study, the effects after 6 months of the selfsame intervention were examined to evaluate the sustainability of positive intervention effects. Method: The 6-week mHealth intervention consisted of an experimental group (ESM self-monitoring and personalized feedback), a pseudo-experimental group (ESM self-monitoring without feedback), and a control group (providing regular care without ESM self-monitoring or feedback). Carers' sense of competence, mastery, and psychological complaints (depression, anxiety and perceived stress) were evaluated pre-and post-intervention as well as at two follow-up time points. The present study focuses on the 6-month follow-up data (n ¼ 50). Results: Positive intervention effects on sense of competence, perceived stress, and depressive symptoms were not sustained over 6-month follow-up. Conclusion: The benefits of this mHealth intervention for carers of people living with dementia were not sustained over a long time. Similarly, other psychosocial interventions for carers of people with dementia rarely reported long-lasting effects. In order to sustainably contribute to carers' well-being, researchers and clinicians should continuously ensure flexible adjustment of the intervention and consider additional features such as ad-hoc counseling options and booster sessions. In this regard, mHealth interventions can offer ideally suited and unique opportunities.

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“…While finding a cure and improving the management of people living with dementia is a priority for researchers and clinicians alike, it is equally important is a need to support family convenient alternative to face-to-face interventions to deliver education and support for family/friend caregivers [24] [25] [26]. Results from a systematic review by Boots and colleagues [24] suggests that internet interventions for family/friend caregivers of persons with dementia may have positive effects on caregiver well-being, provided that these interventions are tailored to the individual and consist of multiple components.…”

Section: Introductionmentioning

confidence: 99%

Caring for Self while Caring for Others: Impact of Wearable Health Monitoring Devices on Self-care of Family/Friend Caregivers of Individuals Living with a Dementia

McCloskey,

Skerry,

Keeping-Burke

et al. 2019

IJANER

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Dementia is a leading cause of disability and dependency and directly impacts family caregivers. Caregivers often neglect their own health and well-being while caring for a loved one; thereby, placing themselves at risk for adverse health outcomes. Identifying ways to promote well-being among family caregivers is necessary so they can continue in their caregiver role while mitigating ill health effects. This study explored the impact of wearable health monitoring devices on caregivers' engagement with their own self-care needs. Findings provide evidence for the use of a digital health platform in promoting health in caregivers of individuals living with dementia.caregivers who play a pivotal role in caring for these individuals. This need is vital because the majority of persons with dementia live at home under the care and supervision of family [4]. Literature reviewThe literature identifies a range of services and supports that are available in the community to assist those caring for somebody living at home with a dementia. These family/friend supports include resources such as support groups, domestic assistance or help with managing the home, nursing care, personal care services, respite care and educational programs [8]. Despite the wide range of supports available, caregiving resources are often underutilized, even when these services are deemed as highly relevant [9][10]. Reasons for not accessing supports include a lack of awareness of existing services and/or not knowing how to access them, no perceived need, previous negative experiences, perceptions of poor quality, a sense of responsibility and obligation towards the loved one, a concern for privacy and autonomy, and embarrassment [11][12] [13].Caregivers of persons with dementia who do not access community services report higher levels of depression [14], role resentment [15] and anger towards their care recipient [16] in comparison with caregivers who do access services. Caregivers who use community supports also anticipate being able to care for their loved one at home for longer periods of time than caregivers who do not access services [17]. Nonetheless, community supports are often underutilized by family caregivers. One study reports up to 80% of caregivers of people with dementia do not access community services, or only do so during a crisis [14]. A recent scoping review on home dwelling individuals with dementia and their carers identified five categories of interventions used to improve the use of community-based resources: i. referral enhancing interventions aimed at directing people to use services that are perceived to be beneficial for them; ii. awareness and information interventions that address the population's lack of knowledge about available resources; iii. monetary support interventions that address user fees and private payments for services or support; iv. inpatient focused interventions that capitalize on hospital admissions to promote the use of services; and, v. case management interventions that involve a key person overse...

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Acceptance and treatment effects of an internet‐delivered cognitive‐behavioral intervention for family caregivers of people with dementia: A randomized‐controlled trial

Cited by 38 publications

References 78 publications

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

The necessity for sustainable intervention effects: lessons-learned from an experience sampling intervention for spousal carers of people with dementia

Caring for Self while Caring for Others: Impact of Wearable Health Monitoring Devices on Self-care of Family/Friend Caregivers of Individuals Living with a Dementia

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