Adaptation to juvenile rheumatic disease: A controlled evaluation of functional disability with a one-year follow-up.

Timko, Christine; Stovel, Katherine; Moos, Rudolf H.; Miller, John J.

doi:10.1037/0278-6133.11.1.67

Cited by 50 publications

(31 citation statements)

References 28 publications

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“…These results failed to confirm our hypothesis that children with JRA have problematic peer relation- (20,59), our data suggest that JRA does not adversely impact the ability to get along with peers. Our findings are similar to those reported by Harris et al (22).…”

Section: Discussioncontrasting

confidence: 57%

Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis

Noll

Kozlowski

Gerhardt

et al. 2000

Arthritis & Rheumatism

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Section: Discussioncontrasting

confidence: 57%

Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis

Noll

Kozlowski

Gerhardt

et al. 2000

Arthritis & Rheumatism

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“…Depressive episodes become less common in later life, suggesting that experience enables patients to learn to cope with their disease more effectively. This supports the hypothesis suggested by Timko et al (1992) that psychosocial adjustments continue with time as an individual adapts to his or her disease.…”

Section: Moodsupporting

confidence: 84%

“…Social support from the family is a predictor of global self-worth, whereas patient depression is related to poor social support and family conflict (Cuneo and Schiaffino, 2002). Previously, parental questionnaire-based studies have suggested that there is an association between parental distress and a child's psychological maladjustment (Timko et al, 1992). More recently, it has been suggested that the use of parental reports for measuring a child's psychological adjustment introduces a bias in the reporting of the child's psychological state, with any maladjustment in the parent often being falsely transposed to the child.…”

Section: Familymentioning

confidence: 99%

Overview of the psychosocial concerns of young adults with juvenile arthritis

Packham¹

2004

Musculoskeletal Care

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Young adults who develop juvenile idiopathic arthritis in childhood have a significant risk of long-term morbidity and continuing disease activity in adulthood. The impact of a physically restricting and painful chronic illness can make the transition from adolescence to adulthood more challenging. In this overview of the psychological and social impact of juvenile arthritis on young adults, particular attention is given to those areas that are of concern to this age group. The transition from adolescence to adulthood can be detrimentally affected not only by the attitudes of peers and parents, but also by the attitudes of the individual with arthritis. Chronic arthritis, including juvenile arthritis, is related to increased rates of anxiety and depression. In the face of functional restriction, pain, and poor body image, social and sexual relationships may be harder to develop and maintain. The family of the young adult may also be affected on many levels. Employment and financial security are common and well-founded concerns of young disabled adults.

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“…A versão pediátrica do Health Assessment Questionnaire 11,18,19 , o Childhood Health Assessment Questionnaire (CHAQ), com adaptação cultural em diversos idiomas 20 , possibilita, com vantagem, o uso deste instrumento para avaliação de artrite crônica desde a infância até a vida adulta. Confirmamos, no presente estudo, a sua aplicabilidade, avaliando o perfil da capacidade funcional de acordo com a percepção dos pais nas consultas de rotina.…”

Section: Discussionunclassified

Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

Brasil¹,

Ferriani²,

Machado³

2003

J Pediatr (Rio J)

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ResumoObjetivo: estudar o impacto da artrite crônica na qualidade de vida relacionada à saúde, por meio de dois instrumentos autoaplicáveis: a versão destinada aos pais do Childhood Health Assessment Questionnaire (CHAQ) e do Child Health Questionnaire (CHQ) PF50 ® .Método: os dois questionários foram respondidos por 36 pais, após instruções durante 1 a 2 visitas clínicas, sendo os índices da Capacidade Funcional (CHAQ), Físico e Psicossocial (CHQ) comparados com as medidas essenciais de atividade da doença: (1) a avaliação global pelo médico, (2) a avaliação global pelos pais, ambas em escala analógica visual de 10 cm, (3) o número de articulações ativas, (4) o numero de articulações com limitação dos movimentos, (5) a velocidade de hemossedimentação.Resultados: houve diferença significante entre os grupos oligoarticular e poliarticular, sendo os índices de atividade maiores no poliarticular, com exceção da velocidade de hemossedimentação, avaliação global pelos pais e índice psicossocial, confirmando diferentes níveis de percepção pelos pais sobre a atividade e prognós-tico. A melhor responsividade estatística frente à intervenção terapêutica, em duas visitas consecutivas, foi a medida da avaliação global pelo médico entre as subjetivas, tendo as medidas avaliadas por instrumentos de responsividade intermediária, quando comparadas com o numero de articulações ativas, número de articulações com limitação dos movimentos e a velocidade de hemossedimentação.Conclusão: a medida da responsividade de dois instrumentos de avaliação funcional e da qualidade de vida indicou a sua sensibilidade relativa para estimar a melhora clínica em pacientes com artrites idiopáticas juvenis, recebendo tratamento específico.J Pediatr (Rio J) 2003;79(1):63-8: artrites idiopáticas juvenis, qualidade de vida relacionada à saúde, avaliação funcional, instrumentos auto-aplicáveis, prognóstico. AbstractObjective: to study the impact of chronic arthritis on health related quality of life by means of two self-reported tools: the parents' version of the Childhood Health Assessment Questionnaire (CHAQ) and the Childhood Health Questionnaire PF50 ® (CHQ).Methods: both tools were filled in after proper instructions by 36 parents, during 1-2 clinic visits. The Disability Index (CHAQ) and the Physical and Psychosocial scores (CHQ) were compared to the core set of outcome measures, namely 1) physician's global assessment, 2) parents' global assessment, both scored by 10 cm visual analogue scale, 3) number of joints with active arthritis, 4) number of joints with limited range of motion, 5) erythrocyte sedimentation rate.Results: there was significant difference for all measures of disease activity, being higher in the polyarticular as compared to oligoarticular except for erythrocyte sedimentation rate, parents' global assessment, and psychosocial score. This leads to different parents' perceptions of disease activity and outcome. The responsiveness of the outcome measures during two follow-up visits of patients receiving active treatment indicated...

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Adaptation to juvenile rheumatic disease: A controlled evaluation of functional disability with a one-year follow-up.

Cited by 50 publications

References 28 publications

Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis

Social, emotional, and behavioral functioning of children with juvenile rheumatoid arthritis

Overview of the psychosocial concerns of young adults with juvenile arthritis

Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

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